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e-Patients Blog

The blog of the Society for Participatory Medicine. Want to be a contributor?

A thousand points of pain

Cross-posted from my own blog, and then some E-patients, listen up. We have work to do, work we can do. For the past year I've been learning what I can about the American healthcare system. I started this not as an "injured" patient but as someone who benefitted...

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Welcome VisibleBody.com

At today's meeting of the Advisory Board of the Massachusetts Tech Leaders Healthcare Cluster I learned about VisibleBody.com. Astounding visualization tool – like the old plastic Visible Man/Woman models of long ago. Pan, tilt, rotate, zoom. I can see this as a...

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Ted Eytan’s Twitterview

"Ask your patients what they use, what they want to use, and how you can be there for them." -- Ted Eytan's advice to IT-reluctant health professionals in a Twitterview with Diario Médico.

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Twitter, Facebook, and e-patients

Here is a key line from the Pew Internet Project's report on Twitter and status updating: Twitter users engage with news and own technology at the same rates as other internet users, but the ways in which they use the technology—to communicate, gather and share...

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Raise Awareness of the Reality of Rare Disorders

Wendy White, Founder and President of Siren Interactive, contributes this essay: One in ten Americans is living with a rare disorder, but they are often overlooked in the media, in research circles, and in their local communities. The 2nd Annual Rare Disease Day on...

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The Wellsphere Blogging Controversy

You may have heard of the Wellsphere blogging controversy (if not, here's one take on the issue, and here's another from a different perspective). In a nutshell, Wellsphere went to bloggers in the health world and asked them if they could syndicate their blog entries...

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Computers reduce odds of in-hospital deaths

This reinforces my repeated assertion that healthcare is far, far behind ordinary enterprise in adoption of practices that work: "When computers replace paper, patient mortality rates drop 15% during hospitalization, among other metrics, according to a study of 41...

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The e-patient white paper: Seven Preliminary Conclusions

One year ago today I finished reading e-Patients: How they can help us heal healthcare, the e-patient white paper. It turned my head around because although I'd experienced excellent care in almost all ways, it showed that I as a patient have far more to contribute...

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An e-patient call to arms

E-patients, this is a call to action. Now. I want you to go express yourself on Paul Levy's blog. Most readers of health policy blogs know what a costly, inefficient mess healthcare in America has become. Paul Levy would like the people in his business to work...

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The Society for Participatory Medicine’s ePatients blog highlights items of interest to those in the world of e-patients and participatory medicine. Some of our most popular topics include e-patient stories, e-patient resources, problems in healthcare, medical records, news & gossip, patient networks, policy issues, positive patterns, patient/doctor co-care, patients as teachers, reforming healthcare, trends & principles, and why participatory medicine. Our newest blog posts are below. You can also subscribe to our blog via email.

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