e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
Health System Change: Collaborative Researchers
Ha Tu and Genna Cohen of the Center for Studying Health System Change released their latest report on how Americans gather health information (HTML report; news release). I met with […]
Doctors’ Digital Footprints
Is it “disordered” behavior to Google your doctor? An article in JAMA suggests that doctors be on their guard. Please consider supporting the Society by joining us today! Thank […]
Latinos’ sources of health information
The Pew Hispanic Center and the Robert Wood Johnson Foundation released a report today that is required reading for anyone interested in a more nuanced picture of the e-patient population: […]
Monique tells why she doesn’t see herself as “e”
I'm delighted to present a guest post from cancer patient Monique Doyle Spencer, whose husband found the henna relief for hand-foot syndrome we mentioned yesterday. She is a stitch. To me she's about as empowered as they get, but she says she's always felt a bit cowed...
e-Patient finds henna relief for Hand-Foot Syndrome
Update 8/9/08: Monique posted the detailed instructions she uses at the blog she started for Xeloda side effects. Monique Doyle Spencer, author of the fabulous book The Courage Muscle: A […]
New e-patient population estimate
The Pew Internet Project released the latest estimate for the e-patient population: 75% of internet users. Details on this and an upcoming survey follow… Please consider supporting the Society […]
Interview: Mary Matthiesen, Conversations for Life
Mary Matthiesen, founder of Conversations for Life, has 17 years of front-line experience in healthcare, end of life care, and executive leadership. She's a transpersonal educator, coach, and community facilitator, raising awareness and promoting social change in...
Is ANYONE responsible for the whole patient?
The e-Patients Group has been discussing Shannon Brownlee's book Overtreated: Why Too Much Medicine is Making Us Sicker and Poorer, which tells how the logic of the U.S. healthcare system works against coordination and effective treatment. "Between 20 and 30 cents on...
Medpedia – where are the patients??
Medpedia has gotten a lot of publicity in the past week. Considering that Wikipedia has disavowed* usefulness for patients, Medpedia sounds like a potentially great idea. * See Jon's correction in Comments. --EPD But when I saw their home page it literally took my...
Take control of your images!
Where to get DICOM readers
Update: links to free viewers for Windows, Mac, and Linux, for the DICOM image format used for scan imagesBackground information on DICOM, and the Wikipedia entryLinks to sample images, so you can experiment with a viewer Why I'm writing about this: Linux guru Doc...
An e-Patient Hero Leaves Us
Randy Pausch, teacher, speaker, e-patient, and father dies at 47.
Surprise! Students Find Inaccurate Health Information Online
A new study in the Journal of Medical Internet Research (JMIR) suggests that inaccurate medical information is easily found and regurgitated by students. But the topic the study chose to […]
