e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
Are on-line pharmacies a threat to participatory medicine?
In a piece in the New York Times 7/9/08 (Abuses are Found in Online Sales of Medication) a report (also out Weds) from Columbia University is described. According to the […]
E-patients with Agency (or Attitude?)
What are the social and psychological factors that affect how someone is treated — or even their health outcomes? This question has popped up in my reading and in my […]
The Two Toms
Our dear friend, our brother, our hero, the inimitable Doc Tom, died on Good Friday 2006. Even though his untimely death came as a shock, Tom Ferguson had already far […]
Observations of Daily Living and Personal Health Records
Following up on Gilles Frydman’s comments about Observations of Daily Living (ODL), we found another ODL post by e-Patients Group ally Kevin Kelly at The Quantified Self: Detailed quantifiable self-observation […]
Patriotic Participation
[Don’t miss yesterday’s related post about the founding heroes of patient empowerment.] Something important is afoot in the land when people are able to access and share “industrial strength” information […]
CNN’s “Empowered Patient heroes” recognizes Tom Ferguson and Gilles Frydman
Today’s entry in the CNN.com “Empowered Patient” series, by medical correspondent Elizabeth Cohen, is titled Empowered heroes’ hard lessons now help others: This week, as we reflect on American heroes, […]
Pez Dispensers = Inspiration
Check out the Diabetes Mine Design Challenge winners for examples of how e-patients can help heal health care, as we like to say around here. I’m especially taken with the Pez dispenser-inspired Maximum Slide gadget, but then again I may just be charmed by the comic book presentation of their idea.
Doc Searls: patient as platform and “point of integration”
Note added afterward by e-Patient Dave:Everyone, please read this post well and understand it well. I think this is a signal moment in our history. As much as I’ve believed […]
Information Overload: Problem or Not?
In order to take command of your health, you must have access to information. Fortunately, the availability of information has been greatly enhanced by the advent of the Internet. In […]
Common Framework for Networked Personal Health Information
Today, June 25, 2008 the Markle Foundation’s Connecting for Health Initiative, a public-private collaborative group engaging more than 100 organizations representing all major components of the health sector, released a […]
Participatory Medicine at NIH
I always suspect that audience members have as much to share as I have to say. So when Mary Madden and I received an invitation to speak at the National […]
Welcome, “Reasonably Well”
The Reasonably Well blog is authored by Julia Schulia, a patient of Sjogren’s Syndrome, a progressive autoimmune disease. She read the e-patient white paper (have you?), and she gets it. Welcome to the family!
