e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
Information Overload: Problem or Not?
In order to take command of your health, you must have access to information. Fortunately, the availability of information has been greatly enhanced by the advent of the Internet. In […]
Common Framework for Networked Personal Health Information
Today, June 25, 2008 the Markle Foundation’s Connecting for Health Initiative, a public-private collaborative group engaging more than 100 organizations representing all major components of the health sector, released a […]
Participatory Medicine at NIH
I always suspect that audience members have as much to share as I have to say. So when Mary Madden and I received an invitation to speak at the National […]
Welcome, “Reasonably Well”
The Reasonably Well blog is authored by Julia Schulia, a patient of Sjogren’s Syndrome, a progressive autoimmune disease. She read the e-patient white paper (have you?), and she gets it. Welcome to the family!
Have you ever heard of ODL?
I had not until this morning when I read a blog entry from Ted Eytan. I am not the only one, since a Google search for ODL definition leads nowhere. […]
Data and Insights on Minority Populations
The Pew Internet Project‘s sample sizes for health surveys have been too small to do in-depth analysis on race/ethnicity and economic status. One challenge is that a significant portion of […]
Physician, Teacher, Farmer
Alan Greene emailed this dispatch from Italy: While attending the 16th IFOAM Organic World Congress, Cheryl and I met a delightful man from the Netherlands named Martien Lankester, executive director […]
Psych Central in Time’sTop 50
Congratulations to our own John Grohol, CEO & Publisher of Psych Central, which has just been named one of the 50 best websites by Time magazine! (Check out the rest […]
Participatory Medicine: an End to Rational Ignorance in Medicine
Starting in the mid 90s a new paradigm of medicine was born ― first as a grassroots movement and then rapidly evolving into a phenomenon of great interest to public […]
CCHIT, PHR and the Lack of e-Patient Representation
When Google Health was launched, a few weeks ago, all the onus was put on the privacy issue. So much so that we may have lost focus on other issues […]
Parade should have asked e-patients
Aside from debunking a crummy column, this is a call to action for journalists. Today Parade featured a column that appears to be pure flackery. If the editors had done […]
Information Therapy Conference
The Information Therapy conference just ended yesterday and my head is buzzing with a few favorite moments: 1) Josh Seidman‘s speech connecting our venue, the Newseum, to his mission by […]
