e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
Parade should have asked e-patients
Aside from debunking a crummy column, this is a call to action for journalists. Today Parade featured a column that appears to be pure flackery. If the editors had done […]
Information Therapy Conference
The Information Therapy conference just ended yesterday and my head is buzzing with a few favorite moments: 1) Josh Seidman‘s speech connecting our venue, the Newseum, to his mission by […]
Diabetes Reloaded
Apparently it is video week on e-patients.net! Amy Tenderich of DiabetesMine released this call-to-arms yesterday: But it’s not really a call-to-arms for e-patients. Please consider supporting the Society by […]
An e-Patient discusses how technology helped him
In February 2007 the Washington DC PBS station, WETA, produced a pilot program for a series called “Healthcare 360,” produced by George Mason University and the Agency for Healthcare Research […]
CaringBridge, CarePages: community support sites
This weekend the Associated Press is publishing a story about CaringBridge and a similar site, CarePages. It relates the experience of several users, including my community and family during my […]
E-patient Interview: Keith Schorsch
When Keith Schorsch began suffering from facial paralysis, fatigue, and severe muscular and skeletal pain, eleven doctors failed to identify the cause. Luckily, a friend recognized the symptoms as similar to what she had suffered when she had Lyme disease – and that’s...
How do US journalists cover medical news?
A really interesting evaluation of 500 medical stories from the press covering treatments,tests, products & procedures is available at PLoS.
This should be required reading for anyone interested in the power of e-patient groups, since these groups very often debunk improperly reported news.
Nice Review at Consumer Reports
Orly Avitzur, a neurologist and e-Patient savvy doc, is now a medical editor at the Consumer’s Union/Consumer Reports. She’s written an excellent short review of some of the important developments […]
Unimplementable standards: seedie.org
A tip of the e-hat to Dr. Ted for this *splendid* reading for people involved in EMR/PHR: SEEDIE: Society for Exorbitantly Expensive and Difficult to Implement EHRs. Don’t miss the […]
e-Patient stories: several types
Cross-posted (with additions) from my own blog 5/25/08 As I talk to people about “participatory medicine” and patient empowerment, I’ve needed to think out what that term really means when […]
In memorial: e-Patients Have Lost an Important Leader
On Sunday, May 25, 2008, The Sojourner died. She was perhaps one of the most active and loved e-Patient users of the virtual world Second Life. In the real world […]
Here Comes Everybody
Over on the Inkwell, our own Jon Lebkowsky is interviewing Clay Shirky, author of “Here Comes Everybody.” My favorite quote so far: “The places where experts matter and flourish are […]
