e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
Diabetes Reloaded
Apparently it is video week on e-patients.net! Amy Tenderich of DiabetesMine released this call-to-arms yesterday: But it’s not really a call-to-arms for e-patients. Please consider supporting the Society by […]
An e-Patient discusses how technology helped him
In February 2007 the Washington DC PBS station, WETA, produced a pilot program for a series called “Healthcare 360,” produced by George Mason University and the Agency for Healthcare Research […]
CaringBridge, CarePages: community support sites
This weekend the Associated Press is publishing a story about CaringBridge and a similar site, CarePages. It relates the experience of several users, including my community and family during my […]
E-patient Interview: Keith Schorsch
When Keith Schorsch began suffering from facial paralysis, fatigue, and severe muscular and skeletal pain, eleven doctors failed to identify the cause. Luckily, a friend recognized the symptoms as similar to what she had suffered when she had Lyme disease – and that’s...
How do US journalists cover medical news?
A really interesting evaluation of 500 medical stories from the press covering treatments,tests, products & procedures is available at PLoS.
This should be required reading for anyone interested in the power of e-patient groups, since these groups very often debunk improperly reported news.
Nice Review at Consumer Reports
Orly Avitzur, a neurologist and e-Patient savvy doc, is now a medical editor at the Consumer’s Union/Consumer Reports. She’s written an excellent short review of some of the important developments […]
Unimplementable standards: seedie.org
A tip of the e-hat to Dr. Ted for this *splendid* reading for people involved in EMR/PHR: SEEDIE: Society for Exorbitantly Expensive and Difficult to Implement EHRs. Don’t miss the […]
e-Patient stories: several types
Cross-posted (with additions) from my own blog 5/25/08 As I talk to people about “participatory medicine” and patient empowerment, I’ve needed to think out what that term really means when […]
In memorial: e-Patients Have Lost an Important Leader
On Sunday, May 25, 2008, The Sojourner died. She was perhaps one of the most active and loved e-Patient users of the virtual world Second Life. In the real world […]
Here Comes Everybody
Over on the Inkwell, our own Jon Lebkowsky is interviewing Clay Shirky, author of “Here Comes Everybody.” My favorite quote so far: “The places where experts matter and flourish are […]
What can you do while you’re sitting in the doctor’s office waiting room?
The new iPhone tool — Symptom Navigator (http://iphone.adam.com) created by A.D.A.M. is a free new mobile health content tool for iPhone & iTouch.
Two Research Papers Published on PatientsLikeMe
Two research papers were published this month on the Health 2.0 website, PatientsLikeMe. PatientsLikeMe is arguably the only “real” health social network online today, because it lets patients share actual […]
