e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
International e-Patients
The internet breaks completely all geographical barriers. This is particularly important for those suffering from a rare condition and who do not have direct access to the few major cancer […]
Online Patient Groups
Laura Landro's column in the Wall Street Journal features a series of profiles of online patient groups like MPDinfo.org and ACOR.org, among others. Now seems like the right time to post some data that I've been holding back, waiting for the right opportunity to talk...
Geologic/Patient Ages
Four months ago I had the opportunity to backpack with my son Kevin from the south rim of the Grand Canyon down thousands of feet to the floor of the […]
Some Doctors are Speed Bumps on the e-Patients Road
If you go to enough conferences and industry events, it can sometimes be a bit of an echo chamber, especially if they are things like “Web 2.0” conferences — a […]
Reading Behind the Scenes: CafePharma and Others
The New York Times today featured an article about growing online communities for the drug and medical device makers employees and sales reps (via bookofjoe), such as CafePharma. How does […]
Are e-Patients More Likely to Try Medical Tourism?
It’s an interesting question, because as people become more informed about their conditions and treatment options, they also often learn more about the costs associated with treating their condition. When […]
The Power of Informed Patients in the UK
This post is available here
E-patients and Health 2.0
In an alternate universe, there’s a world exploring the innovations of Web 2.0 in healthcare more generally (and, from my eyes, with a little less focus on the individual person […]
Wikipedia as an e-patient source
Read this quote and think about which industry is being admonished: “We cannot, however, continue to reject Wikipedia because we aren’t comfortable with the wiki process itself… To be quite […]
E-Patients And The Participatory Internet- Part I
The participatory Internet will be an ideal platform for e-Patients that will have a dramatic impact on how health care is provided.
e-Patients Don’t Fit Stereotypes!
If doctors think about e-patients at all, they may imagine that they are Web-savvy young or middle-aged people. Assertive baby boomers waving pages of print-outs from the Internet send shivers […]
Health Search
Bill Tancer is the general manager of global research at Hitwise and writes a column for Time.com called “Science of Search.” His recent column on “Restless Leg, Mumps and Other […]
