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e-Patients Blog

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E-patients and Health 2.0

In an alternate universe, there’s a world exploring the innovations of Web 2.0 in healthcare more generally (and, from my eyes, with a little less focus on the individual person […]

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Wikipedia as an e-patient source

Read this quote and think about which industry is being admonished: “We cannot, however, continue to reject Wikipedia because we aren’t comfortable with the wiki process itself… To be quite […]

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e-Patients Don’t Fit Stereotypes!

If doctors think about e-patients at all, they may imagine that they are Web-savvy young or middle-aged people. Assertive baby boomers waving pages of print-outs from the Internet send shivers […]

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Health Search

Bill Tancer is the general manager of global research at Hitwise and writes a column for Time.com called “Science of Search.” His recent column on “Restless Leg, Mumps and Other […]

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My Idea of Great: Health Data Geeks Convention

I was lucky enough to be invited to a “Data Users Conference” sponsored by the Health Information National Trends Survey/National Cancer Institute, which really should have been called Health Data […]

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Personal Health Records

Since keeping track of your own health records is part of the e-patient responsibilities described by Charlie Smith in today’s post, I thought I’d point out a study sent to […]

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New e-Patient Reporting Tool

A new web site called “Who Is Sick” (conveniently located at www.whoissick.org) allows people to report their symptoms (cough, fever, nausea, etc.) to be logged in real time. The service […]

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Are E-files Spurring an E-shortage?

Gilles Frydman points us to this story from The Boston Globe today that illustrates one of the downsides to this push to electronic medical records — people who know how […]

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Patient-Driven Content at MedShelf.org

Online support groups have long been recognized as an important and unique source of medical information and social support for patients. Derek Hansen, Paul Resnick, and Sean Munson at the University of Michigan’s School of Information, are trying to help online support groups create community repositories using wiki software at http://medshelf.org.

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The Society for Participatory Medicine’s ePatients blog highlights items of interest to those in the world of e-patients and participatory medicine. Some of our most popular topics include e-patient stories, e-patient resources, problems in healthcare, medical records, news & gossip, patient networks, policy issues, positive patterns, patient/doctor co-care, patients as teachers, reforming healthcare, trends & principles, and why participatory medicine. Our newest blog posts are below. You can also subscribe to our blog via email.

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John M. Grohol, Psy.D.

Dr. John M. Grohol, Psy.D. is a psychologist and technologist who specializes in examining and writing about the confluence of patient rights, technology, and mental health. In 1995, he founded Psych Central, the world's leading independent mental health site overseen by mental health professionals, which was acquired by Healthline in 2020. He founded and continues to oversee the independent online support group community for mental health concerns, My Support Forums since 2001. He is a co-founder of the Society for Participatory Medicine.

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