e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
My Idea of Great: Health Data Geeks Convention
I was lucky enough to be invited to a “Data Users Conference” sponsored by the Health Information National Trends Survey/National Cancer Institute, which really should have been called Health Data […]
Personal Health Records
Since keeping track of your own health records is part of the e-patient responsibilities described by Charlie Smith in today’s post, I thought I’d point out a study sent to […]
How Far Should Patients Go in Self Management
In the discussion of patient empowerment, it is worth considering how much care the patient should take on their own shoulders, and when they should turn to their doctor for […]
Dr. Tom and the E Patient Revolution
In this first post, I’d like to address the “e Patient world” and what you may expect to see develop in this area in the future. E Patients are those […]
New e-Patient Reporting Tool
A new web site called “Who Is Sick” (conveniently located at www.whoissick.org) allows people to report their symptoms (cough, fever, nausea, etc.) to be logged in real time. The service […]
Are E-files Spurring an E-shortage?
Gilles Frydman points us to this story from The Boston Globe today that illustrates one of the downsides to this push to electronic medical records — people who know how […]
Patient-Driven Content at MedShelf.org
Online support groups have long been recognized as an important and unique source of medical information and social support for patients. Derek Hansen, Paul Resnick, and Sean Munson at the University of Michigan’s School of Information, are trying to help online support groups create community repositories using wiki software at http://medshelf.org.
Too Radical?
I have been struggling with what kind of post should go into the “found on the net” column, but finally discovered something that must certainly qualify. Granted, I’m a little […]
Chemotherapy Fog Is No Longer Ignored as Illusion
April 29’s New York Times featured a story about breast cancer survivors who meet online to talk about “chemo brain” and how to cope with it: “Chemotherapy Fog Is No […]
At least one Medical School starts to “get it”
If you’re like me and wonder why- oh- why our medical education system is not embracing the information age more quickly, then an editorial recently written by Dr. Joe Martin […]
Some of My Favorite Health/Pharma Blogs
I just thought I’d post a short welcome message to see how this works and to make sure I’ve got the hang of posting something in this blog. A part […]
The Voice of the Patient
This January 12, 2005 interview with Don Berwick, at the Health Affairs web site, underlies the importance of doing all we can to make the “voice of the patient” directly accessible-to the press, health policy planners, government officials, and medical professionals.
