e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
Erin Moore: “Your message did not fall on deaf ears.”
Last week SPM member Erin Moore (see her previous posts) handled an opportunity in Washington really effectively, and she got heard. Here's a cross-post of her news, with permission, from her blog 66 Roses. ______________ Last week I traveled to Washington, DC for two...
“Imagine someone had been managing your money and you thought you weren’t qualified.” (Reprise five years later)
Five years ago last week, I posted this. A lot has changed since then. Next week I'll be re-posting what happened next, back then. The subject is still just as valid, so do think about it. Here's a "reprint": _________________ I want you to think about something for a...
Digital Communication and m-Health in Developing Nations
Approximately 98 % of the world's population are now owners of cellphones, including many adults in remote, hard to reach locations. This proliferation of mobile devices has the potential to improve our ability to diagnose and track disease; to tackle and disseminate...
Detecting Emotional Contagion in Massive Social Networks (PLOS One)
This isn't directly related to participatory medicine per se, but for students of the social web and "health is social" factors, this will be fascinating and important. (In my speaking work, it's always useful to cite new research that sheds light on how social...
Surgeon: “Participatory Medicine encourages partnership between patient and provider”
I now ask all my patients, at the end of our visits, “Did I get it? Did I successfully answer your questions and address your fears?” Dr. Marc Katz is a cardiac surgeon in Richmond Virginia. His op-ed, ‘Participatory Medicine’ encourages partnership between patient...
Guest post by Kate Lorig: Words Matter – Let’s Reconsider the Term “e-Patient”
This is a real treat - a guest post by SPM member and participatory pioneer Kate Lorig. Kate was a friend of our founder "Doc Tom" Ferguson, is cited twice in his e-patient white paper (see right sidebar), was the author of an important essay What will it take to...
#patientgate – digital recordings change everything
Glyn Elwyn, a very smart guy/MD who's currently thinking deep thoughts at Dartmouth, was a participant at the undisclosed location on the undisclosed project I was involved in two weeks ago. He's posted a real barn-burner on BMJ. Its headline: "Patientgate" - digital...
What’s the PATIENT value in health IT?
Since HIMSS14, there's been a robust discussion on the SPM listserv about the "business of IT" in healthcare. There were a number of our number present in Orlando for the HIMSS conference, with some of them appearing on the platform. The conversation on our listserv,...
WikiProject Medicine: med students join in producing high quality Wikipedia articles. (You can, too.)
Significantly expanded, below the video, an hour after the first post. Peter Frishauf, member of the editorial board of our journal, has brought what is to me the most exciting news for participatory medicine since the OpenNotes project. Importantly, this news may...
“How collaborating with patients improves hospital care”: Guardian
Care designers and fans of patient-centered care, listen up: a hat tip to Danish friend Malene Louise Djurhuus Laubinger for this, from The Guardian: How collaborating with patients improves hospital care. We've often said on this blog that participatory medicine can...
“Health cometh not from healthcare”
We often say here that clinicians should welcome activated patients. Hand in glove with that, we must also say: Yo, patients: get activated! Know what works, and act on it! Huzzah to Swedish SPM member and Parkinson's patient Sara Riggare for this, on Facebook, which...
Rare Diseases: Powered by Patients
A guest post by Wendy White of Siren Interactive in honor of Rare Disease Day: Can empowered patients drive change in healthcare? Take a look at the progress that has been made in the rare disease community over the last 30 years—much of it spearheaded by patients and...
