e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
Patients-included Pharma? Disingenuous, and busted.
Prolog by e-Patient Dave: "Patients Included"Â was created by Lucien Engelen in the Netherlands for his initiative to have patients speak at all medical events. We in the patient community are taking it everywhere we can. But sometimes - as in this story - someone...
A neurosurgeon confronts his mortality: lessons in statistics and living while you can
Here's a new "must read" for people with a grim prognosis, submitted by Twitter friend @Scanman (Vijay Sadasivam), from the Tamil region of India: How Long Have I Got Left?, by Stanford neurosurgeon Paul Kalanithi. Seven years ago that was my situation. This was the...
Evernote is my EMR
This post originally appeared on NickDawson.net here. Spoiler alert: I’m not dying and there doesn’t appear to be anything major wrong with me. I know, you hate spoilers. But I thought I’d get that one out of there way. It makes the rest of this considerably...
Prize-winning Consumer Reports app seeks study participants: Hip or Knee Replacement
For U.S. residents -Â I spoke last month at a health price transparency conference in Washington, sponsored in part by Robert Wood Johnson Foundation. In a side session we saw presentations by the winners of the Health 2.0 Developer Challenge for shopping...
What to do if your doctor wouldn’t fax YOU your records…
Our member Keith Boone with a great explanation of what to do when a provider's office gives you the "I can't do this because of HIPAA" about giving you your records: http://motorcycleguy.blogspot.com/2014/01/knowing-who-to-talk-to-is-half-battle.html A little teaser...
e-Patient Lisa Adams
In this guest blog post, member Carly Medosch describes Lisa Adams whom she knows from social media. Lisa Adams was diagnosed with stage 4 breast cancer and documented her journey in social media. In another post below we describe the media firestorm that was caused...
Husband-wife pieces in NY Times and The Guardian break ethics and lack a clue (re @AdamsLisa)
Update 9:20 pm ET: see important additions at the subhead below. When I wrote this today I didn't have time to dig for excellent links like those. Thanks to Susannah Fox's Twitter feed. One of the best social media patient figures I met, long ago, was @AdamsLisa -...
Hot Trends for 2014: Care Collaboration and Coordination Top the List
In 2014, the baby boomers (individuals born between 1946 and 1964) will turn 65 at a rate of nearly 10,000, individuals a day. Over the next five years 17 million baby boomers turn 65. That’s a lot of people retiring, joining the Medicare system developing chronic...
Response to “We need to talk about TED” from an evangelist’s perspective
The next day I made a correction per Dick Morris's comment, and toned down some of my adjectives to be more suitable outside of our private listserv. Dr. Bratton, of course we welcome dialog. In our Society for Participatory Medicine, part of our work is to change...
Patient Designed: Top 3 things hospitals can do today to be more participatory
The Society for Participatory Medicine, through its founders and mission, has a strong belief in the expertise of its patient members - many of whom identify as providers or journalists or have expertise in HIT, health economics and other areas. Patients, often...
How WebMD May Unfairly Influence Your Health Choices — Through Search
Go ahead and type in virtually any health or mental health condition into Google. Heck, even try a popular medication or two. Time and time again, you'll notice a reliable trend -- 2 or 3 of the top 10 search results are nearly always going to be WebMD. But not...
Breaking news: New Orleans health chief Dr. Karen DeSalvo Named to Head ONC
As we've said endlessly here (and in Washington), one of the key enablers of better healthcare is access to information. For that subject there's no more important job in the world than America's National Coordinator for Health IT, who runs ONC (Office of the National...
