e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
Monthly introduction to e-Patients.net
This is our monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine. Follow the Society on Twitter (@S4PM), Facebook, and LinkedIn. Here's how to become a Society member, individual or corporate. Our publications: This...
What I Wish I’d Known Earlier…
This summer, I am reflecting and writing about what I wish that I had known earlier about getting good care following active cancer treatment, based on my experience with five different cancer diagnoses and what I have learned from others. If you have been diagnosed...
“Apprenticeship” for developing patient skills: results from the CollaboRhythm platform
I've just attended John Moore MD's "defense," as they call it - his presentation of the results from his PhD thesis project at the M.I.T. Media Lab. The project has participatory medicine written all over it: it's about Developing the role of the patient using an...
Ivan Oransky (Reuters, RetractionWatch) joins MedPage Today
I'm thrilled to say that Dr. Ivan Oransky is now VP and editorial director of MedPage Today. From the announcement in Crain's New York: "Dr. Oransky, previously on the editorial staff at Scientific American and The Scientist and most recently executive editor of...
PCORI and us
You may remember that I'm a Patient Reviewer for PCORI (Patient Centered Outcomes Research). PCORI, a federal initiative, helps people make informed health care decisions, and improves health care delivery and outcomes, by producing and promoting high integrity,...
A parent speaks: “Our child’s disease is OUR disease”
Susannah: On June 14, 2013, I attended the National Meeting on Promoting and Sustaining Collaborative Networks in Pediatrics where we discussed topics covered in a special issue of Pediatrics, among other initiatives and trends. Justin Vandergrift was one of the...
NY Times: “Do clinical trials work?”
Just a quick note on something I'm happy to say we've been hollering here for years: A lot of what passes for "evidence" from peer reviewed medical journals is scientifically weak, and has never been verified by an independent lab. That means to be scientific,...
Crowd trumps credentials: Medpedia’s dead.
In medicine, to achieve the best you need the best information. So an essential question is, who gets to say what's best? That question took a sharp turn this week with the news that Medpedia is dead. Medical librarian Laika Spoetnik has a strong post on the demise,...
On the road to shared office visits
Guest blogger Peter Elias, MD describes his journey on opening up his office notes to patients. Peter is a family physician in active primary care practice since 1977, co-founder of a group practice now owned by a hospital-based multi specialty group, with a...
How e-Patients Plan for End of Life Decisions
Decades ago, most people died at home. Today health care technology including various surgical procedures, the use of feeding tubes, ventilators, CPR, dialysis, and blood transfusions, has put patients and physicians in the precarious position of having to choose...
“Stetho-Snopes”: MightyCasey calls for medical myth-busting
On Saturday I spotted the weekly top ten post from Snopes.com, the fabulous rumor-checking site, with the ten rumors that gave them the most activity last week. I thought "Man, I sure wish there was a site that reliable for medical information on the internet," and...
Caregivers: a celebration
Becoming a caregiver seems to change people as health information consumers. They turn up the volume on every information source. They track down information as if it is a competitive sport.* They don't let pay walls or office hours stand in their way. It's akin to...
