e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
A sign of the times: thyroid cancer patient says TWO docs recommended a patient organization
Well well well, dare I say the times are changing? Not long ago all we ever heard was "Stay off the internet." But a friend just said his endocrinologist and his radiologist BOTH recommended ThyCa.org to him! (Twitter: @ThyCaInc) It's "created and maintained by...
Provide Your Input to Inform ONC’s Consumer eHealth Strategy
On Monday, March 25, 2013, ONC, in collaboration with Cornell University, launched a new web platform for obtaining public input to inform health IT strategic planning. Check out the new PlanningRoom site, and provide your thoughts. ONCs initial focus is on consumer...
Tweetchat on Wed March 20 about Gimme my DAM Data, Blue Button Plus and Commonwell
Please join us for a tweetchat this evening - Wednesday March 20 at 8 PM ET/ 5PM PT. We'll talk about: What's new with Gimme my DAM Data #gmdd ? - Wall Street Journal picked the story at SXSW conference...
RECENT rule violations that caused serious harm: CMS releases searchable database
For the patient safety crowd - which is all of us, when we shop for medical services: Cheryl Clark of Health Leader just posted this on Facebook, from this weekend's Boston meeting of the Association of Health Care Journalists (AHCJ): "For the first time, providers,...
“Show Me the Data!” – Eric Topol rocks the #HIMSS13 keynote
Not only did famed cardiologist Eric Topol wear his brand new Regina Holliday "Walking Gallery" jacket this morning, for his major keynote address at the HIMSS health IT conference; he cited several other members of our society, including Hugo Campos. Then he ended...
Revised: *could have been* the biggest HIMSS news for e-patient families: CommonWell Health [data] Alliance
Update March 24: I'm retitling this post, and putting it on hold, pending resolution of important concerns raised by other members of our Society for Participatory Medicine. In particular, see Adrian Gropper's posts on The Health Care  Blog. This is almost a...
Monthly introduction to e-patients.net, blog of the Society for Participatory Medicine
This is our monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine. Follow the Society on Twitter (@S4PM), Facebook, and LinkedIn.  Here's how to become a Society member, individual or corporate. Our publications: This...
Rare Disease Day 2013: Help Spread Awareness
A guest post by Wendy White, Founder & President of Siren Interactive Each year Rare Disease Day is celebrated worldwide on the last day of February. This year is even more special because it’s the 30th anniversary of the Orphan Drug Act, which provides incentives...
Medication Management: Experience of Engaged Clinicians and Empowered Patients
The overlap between the clinical aspects of our health journey and behavior of health team members occurs most often in medication management. Effective medication management depends on empowered, informed patients and caregivers prepared for clinician visits, and...
Partnering with patients – about patient centered RESEARCH METHODS
This is a long post, but it strikes deep to the core of the transformation underway in medicine, even in the science that drives medicine. It appears the world is starting to change, in a very good way. We've often written about the changing culture of medicine, as...
Fwd: [New post] Does scientific misconduct cause patient harm? The
Important quick update - pardon the lack of formatting - I'll try to clean it up later - ---------- Forwarded message ---------- From: Retraction Watch Date: Tue, Feb 19, 2013 at 4:22 PM Subject: [New post] Does scientific misconduct cause patient harm? The case of...
Reading our own EKG
There's been a great thread on Dr. Wes' blog and the SPM listserv about patients obtaining and reading their own EKG's.  As you can imagine -- lots of pros and cons. A significant difference noted between the right to have the information ("tracing") and the ability...
