e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
Revised: *could have been* the biggest HIMSS news for e-patient families: CommonWell Health [data] Alliance
Update March 24: I'm retitling this post, and putting it on hold, pending resolution of important concerns raised by other members of our Society for Participatory Medicine. In particular, see Adrian Gropper's posts on The Health Care  Blog. This is almost a...
Monthly introduction to e-patients.net, blog of the Society for Participatory Medicine
This is our monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine. Follow the Society on Twitter (@S4PM), Facebook, and LinkedIn.  Here's how to become a Society member, individual or corporate. Our publications: This...
Rare Disease Day 2013: Help Spread Awareness
A guest post by Wendy White, Founder & President of Siren Interactive Each year Rare Disease Day is celebrated worldwide on the last day of February. This year is even more special because it’s the 30th anniversary of the Orphan Drug Act, which provides incentives...
Medication Management: Experience of Engaged Clinicians and Empowered Patients
The overlap between the clinical aspects of our health journey and behavior of health team members occurs most often in medication management. Effective medication management depends on empowered, informed patients and caregivers prepared for clinician visits, and...
Partnering with patients – about patient centered RESEARCH METHODS
This is a long post, but it strikes deep to the core of the transformation underway in medicine, even in the science that drives medicine. It appears the world is starting to change, in a very good way. We've often written about the changing culture of medicine, as...
Fwd: [New post] Does scientific misconduct cause patient harm? The
Important quick update - pardon the lack of formatting - I'll try to clean it up later - ---------- Forwarded message ---------- From: Retraction Watch Date: Tue, Feb 19, 2013 at 4:22 PM Subject: [New post] Does scientific misconduct cause patient harm? The case of...
Reading our own EKG
There's been a great thread on Dr. Wes' blog and the SPM listserv about patients obtaining and reading their own EKG's.  As you can imagine -- lots of pros and cons. A significant difference noted between the right to have the information ("tracing") and the ability...
“My Health Counts: e-Patients” to premier on WNED!
This is the big update to our preview post last November. There's a stage in a movement where it starts to get serious media coverage, and ours is coming of age. We've documented the progress: 2009: Susannah Fox was on NPR's Morning Edition:Â Participatory medicine and...
Regina Holliday: What I learned on the road to the Shortys
Cross-posted from Regina's own blog. Please vote for her Shorty Award nomination by posting a Tweet here through Monday, Feb 18. She only needs about 80 votes to get into the top six finalists in #activism. I'm cross-posting this for two reasons. First, in this post...
Health Affairs Patient Engagement Edition – with videos and commentary
The Health Affairs February 2013 issue is titled "New Era of Patient Engagement" and the content matches the title. Nick Dawson describes the day in his blog post Health Affairs is the new shirtless dancing guy Here's a short extract from the blog post. It's worth...
Why Walk–in Medical Clinics Provide a Good Alternative
According to a recent Harris Poll, walk-in medical clinics located in pharmacies, shopping malls, office parks and workplaces are getting more and more popular with health care consumers. The poll reported that of the 3,000 adults surveyed online, 27% said they have...
What if health care…?
For over a year I've been the accidental manager of a community garden. All I did -- I swear -- is point out an open plot of land and people started pitching in, planting, asking friends to join them. All of a sudden we'd transformed a bare patch into something...