e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
An e-Patient Perspective on Stage 2 of Meaningful Use (Adrian Gropper)
At last week's enormous HIMSS (health IT) conference, ONC (the Office of the National Coordinator for health IT) announced the long-awaited rules for Stage 2 of meaningful use. (These are the rules that must be met, for health IT systems to qualify for Federal...
The Power of Rare Disease Patients
I'm honored to post this essay by Wendy White, Founder & President of Siren Interactive: Thanks to the Pew Internet Project, we have a lot of data about ePatients. These empowered, engaged and educated patients (and families) are helping to bring about a...
Health, Technology, and Communities of Color
Serendipity brought me two opportunities this week to present Pew Internet’s data on communities of color and young people, particularly as it relates to health. On Wednesday I was a guest of the Federal HIV/AIDS Web Council and on Thursday I spoke at a meeting...
The Debate Over Patient Access to Lab Results (THCB post from RWJ)
Over on The Health Care Blog, John Lumpkin MD posted a good essay about the proposed ONC rules to let patients automatically see their lab test results. The SGIM Forum (newsletter of the Society for General Internal Medicine) ran a debate about it, and...
Save the Date: PCORI’s National Patient and Stakeholder Dialogue
We encourage our readers to attend this February 27 event and help PCORI shape its agenda for clinical effectiveness research. You can find a link to their draft priorities by clicking to this page. Registration for the forum is required; please see the link in the...
An e-patient issues an RFP, saying what’s important to him
It's funny how things turn out sometimes. Lately I've written a lot here about e-patients taking an active role at a new level in healthcare, not just engaging in their care, but actually defining what it should be. Well, wouldn't you know it, life has provided me...
Helen Palmquist: Supporting my cyber-sisters with words of hope
Guest blogger Helen Palmquist is a member of the Ovarian Cancer National Alliance support community, hosted by Inspire. She lives in suburban Chicago. I was diagnosed with ovarian cancer at age 41, in the pre-Web days of 1987. From my hospital bed after my first...
Alex Albin: Why patients aren’t managing their care (Healthcare
A note on the SPM member listserv from Alexandra Albin, frequent guest contributor here - ---------- Forwarded message ---------- From: Alexandra Albin Here is an article I came across with some relevance to S4PM. 4Â Reasons why Patients aren't managing their care...
What’s your health care dream?
#whatifhc in #TheWalkingGallery Note: This is two posts in one -- scroll down to read Regina Holliday's point of view. From Susannah Fox: For me, Twitter is a free-wheeling space where people dance with ideas. Anyone is welcome to jump into the spotlight...
New editorial series in JoPM asks the tough questions
A new Journal of Participatory Medicine tradition has just launched. Our monthly editorial series will tackle the toughest questions of participatory medicine, from both the patient and the provider side. The first installment, by Joe and Terry Graedon, is titled...
Katie Matlack: iOS medical peripherals: convenient and connected
This guest post from Katie Matlack (reposted from the free site Software Advice) launches a new section of e-Patients.net: "PM Tech." This special branch of e-patient resources is gaining importance as smartphones and tablets become ever more mainstream. Devices that...
Mayo Proposal: Make Med Students Understand Costs?
Corrected 6:50 pm - the Medical Professionalism Blog belongs to the ABIM Foundation, not to the Board. ABIM is the American Board of Internal Medicine, one of the two U.S. organizations that certifies internal medicine physicians. Their The ABIM Foundation's Medical...
