The Doc Tom awards honor the memory of “Doc Tom” Ferguson(1943 – 2006) (Wikipedia). Tom envisioned health care as an equal partnership between e-patients and health professionals and systems that support them. It is his spirit and his work that led to the creation of this Society in 2009.
Nominations for 2019 are closed. Recipients to be announced at our annual conference in Boston, Oct. 15.
Doc Tom was a Family Medicine physician, a visionary and pioneer who sought to empower patients to use online resources, embraced patient contribution, and aimed for professionals to be equal partners with patients. Doc Tom was Medical Editor for the 1994 Millennium Whole Earth Catalog and the incredibly far-sighted 1996 book Health Online: How To Find Health Information, Support Groups, And Self Help Communities In Cyberspace.
His spirit and work led to the creation of the Society, through his peers & followers, whom he called his “e-Patient Scholars Working Group.”
To be announced at our conference, Tuesday, October 15
(See blog post)
e-Patient Principles: Liz Salmi
An exemplar of participatory medicine principles, Liz, known on social media as @TheLizArmy, turned her brain cancer diagnosis in 2008 at age 29 into “an open source chronicle of the patient experience.” Her blog TheLizArmy is her personal journal and health care soap box, receiving over 30,000 visits each year. Liz cares about patient-driven research, open source health data, palliative care, and neuroscience. In 2017 the lucky OpenNotes team named Liz Senior Strategist for Outreach & Communications, She is a patient advisor for The BMJ and PCORI, and is a member of the National Academy of Medicine’s Technologies to Enhance Person, Family, and Community Activation. Liz sent us a brief video to share her views and thanks.
Contribution to SPM: e-Patient Dave and Dr. Danny Sands
Dr. Danny Sands (below) and his patient Dave (left) were founding co-chairs of SPM. For seven years Dave was its most outspoken evangelist through the e-patients.net blog, and Danny its most visible physician voice. Both have served as tireless advocates, individually and together, for participatory medicine and the Society, and Dr. Sands continues as chairman. Dave, a survivor of a nearly fatal kidney cancer, is an international speaker including the highly popular TEDx Talk “Let Patients Help” and lead author of Laugh, Sing and Eat Like a Pig, and Facing Death with Hope. His blog ePatient Dave: Toward a new science of patient engagement is an ecosystem on its own, including much more about the broad range of his global activities
Danny Sands, MD, MPH an internist, completed a fellowship in clinical computing at Beth Israel Hospital and a Master of Public Health at Harvard. He developed, implemented, and evaluated a variety of systems designed to improve clinical care and bridge the gap between patient and physician, including electronic medical records, clinical decision support systems, and a patient portal. He came to know Doc Tom after he co-authored the first peer-reviewed article about doctor-patient email – in 1999.
Danny and Dave authored the book, Let Patients Help, frequently co-present at conferences and meetings, and continue to hone their performance skills as they dance and sing about participatory healthcare. I look forward to being able to post the full rendition presented at SPM2018.