by Society for Participatory Medicine Volunteers | Jul 29, 2016
The past two weeks I conducted an unscientific survey. I asked random strangers what they first thought of when they heard the word “Rare.” I got the following answers: Automobiles Gemstones Jewelry Books Mummies found in peat Animals Manuscripts Records Rugs...
by Society for Participatory Medicine Volunteers | Jul 28, 2016
Rare diseases often get the short end of the stick when it comes to accessible information and resources. That’s why we’re pleased to offer this index of rare disease resources for patients, caregivers, and health care professionals. National Organization...
by Society for Participatory Medicine Volunteers | Apr 10, 2016
Meniere’s Disease, is that what you said? Does it affect my whole body or just my head? Will I always have this dizzy feel? Where the room spins around and makes me reel? And what about the ringing in my ear? Or the fullness that comes and makes me not...
by Society for Participatory Medicine Volunteers | Apr 10, 2016
A fantastic video interview with SPM member Casey Quinlan conducted by John Hoben that discusses the op-ed in the journal, BMC Medicine entitled, Trustworthy guidelines – excellent; customized care tools – even better which she was a co-author on. From the article:...
by Society for Participatory Medicine Volunteers | Apr 10, 2016
It is an exciting time within the Society for Participatory Medicine (S4PM)! The New Year for the organization began with renewed energy for advancing the work of the Society, which in part is to bring engaged patients and engaged providers together in collaboration...
