by Nanette Mattox | Jan 23, 2017
I started becoming an ePatient in 2008 when we were looking for a diagnosis for my eldest son (Aspergers Syndrome) and when I was diagnosed with breast cancer at age 35 in 2010. I naturally empowered myself to better understand and deal my new health reality....
by Nanette Mattox | Jan 23, 2017
I originally became a member of the Society for Participatory Medicine because I was curious to learn about global research for e-patients and e-health. The society promotes a diverse and inclusive culture which is critical to sustainable health IT system development...
by Nanette Mattox | Jan 23, 2017
I joined SPM because I like being a part of anything to do with patient engagement and empowerment, and really want to be a part of this movement and wish to do something similar like this in India.
by Mayank Agarwal | Jul 28, 2016
My name is Alexandra Albin (msaxolotl on Twitter) and I have an orthopedic condition called osteonecrosis or avascular necrosis (AVN). AVN is a painful and debilitating bone disease that typically affects long bones, is caused by a loss of blood supply to the bone,...
by Mayank Agarwal | Jul 28, 2016
On Halloween night 2014, my mother and I found ourselves sitting in an executive suite at the Verizon Center in Washington, DC, eagerly awaiting to see my favorite band, Fleetwood Mac. I know it may be a little odd that someone my age, which at the time was 21, is...
by Mayank Agarwal | Jul 14, 2016
I first met SPM-er and palliative physician, Dr Michael Fratkin on twitter. Michael’s re-imagined end of life caring through video conferencing is amazing unto itself, but more importantly what resonated for me are his insights into dying not as a medical dilemma but...
