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#FDASM: + ca change, + c’est la meme chose

The FDA is holding a public hearing on the “Promotion of FDA-Regulated Medical Products Using the Internet and Social Media Tools.” There is a tremendous amount of buzz on Twitter and blogs about this meeting which will hear 60 speakers, some more than...

#WhyPM?

Note: if you do not use Twitter an explanation of this post’s title may be in order. #WhyPM is the Twitter hashtag we have been using collectively to announce the launch of the Journal of Participatory Medicine and to mention topics of interest from the Journal and...

Question For President Obama

Guest Post: Cindy Throop from http://Open-Health.us, a participatory forum dedicated to effectively including patients in the discussion, planning, and evaluation of health care reform. A lot of money is about to be invested in health care, particularly into health...

e-Patients Are Proud Deviants!

The wonderful Atul Gawande delivered this past Friday a commencement address, titled “Money,” to the graduates of the University of Chicago Pritzker School of Medicine. He touched on and expanded on the theme of his groundbreaking article “The Cost...

e-Patients Demand: Put An End To
Data-Hugging Disorder

“Statistics should be the intellectual sidewalks of a society, and people should be able to build businesses and operate on the side of them” This quote from Hans Rosling is part of a speech where he presented the following: Database-hugging disorder (Dbhd): A...

David Kibbe & Mark Leavitt : Openness vs. Opacity

Background information: The Certification Commission for Healthcare Information Technology (CCHIT) is currently in a monopolistic situation since it is, for the last few years, the only entity allowed to certify EHRs. The HITECH act of ARRA mentions specifically the...

Getting health insurance with a pre-existing condition

Thanks to Amy Tenderich (@DiabetesMine) for mentioning this CNN Empowered Patient entry that could be of real use to many: “Tips for getting insurance when you have a pre-existing condition ” The tips: Become a group of one If you’ve been laid off,...

X PRIZE Blog Rally:
$10M for Health Care Innovators

Scott Shreeve, MD, Senior Health Advisor at The X Prize Foundation and frequent THCB contributor, has asked the health care blogosphere to take part in this blog rally in order to raise awareness about the Healthcare X Prize Foundation competition and encourage public...

Participatory Medicine: What Is It For You?

As the meme is now firmly accepted, I thought we ought to have another round of definition crowdsourcing. If you use the term please stop here for a minute and let us know what it means to you. I will summarize the responses and use the results to update the wikipedia...

Meaningful Use: The Elephant IS In The Room

Comparative Effectiveness:  a  comparison of the impact of different options that are available for treating a given  medical condition for a particular set of patients. Such studies may compare  similar treatments, such as competing drugs, or they may analyze very...

PLEASE, No More Magical Thinking in HIT!

Magical thinking: the ability to draw conclusions that are based on a person’s desire for what reality should be, not necessarily upon what reality actually is. Cargo Cult HIT:  Concepts in HIT that follow all the apparent precepts and forms of evidence-based...

Patients first. Doctors second.

An Op-Ed piece at the healthcare blog, written by 2 MDs from Harvard Medical School is pretty clear! For those of us who believe the time has come for participatory medicine, the following quote is particularly interesting: Empowering patients should be the first step...

Health 2.0 meets Ix: The Rise of the Patient Voices

I have been following with real interest the notes and discussions about the Health 2.0/Ix conference that took place in Boston last week. I am not willing to get involved in this discussion because in some ways I think it missed the most important aspect of the...

Applying Participatory Principles to EHRs/PHRs

Neither health professionals nor patients can do it alone. Let’s make no mistake: We are here to participate and to help! e-Patient Dave original story of the health data transfer from his hospital EHR to Google Health PHR is remarkable in many ways and shows...

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