by Gilles Frydman | May 24, 2012 |
Update 1 June 3: if you’re not familiar with the Open Access issue, start with Peter Schmidt’s comment below, citing a 2008 journal article on the issue, by a former editor of the British Medical Journal. ___________ Update 2 June 3 @9:50 AM PST: we are...
by Gilles Frydman | Jan 12, 2012 |
Note: Although currently not a member of the SPM, I have been involved, since its inception, with Tom Ferguson and others, in the creation of the e-patients white paper . I am also one of the co-founders of the SPM and one of the volunteers who created the...
by Gilles Frydman | Sep 4, 2011 |
I have known Sharon Anderson for many years and watched her eAdvocacy evolve. A nine year leiomyosarcoma (LMS — a very rare cancer) survivor, Sharon has tirelessly used her social work skills to help LMS patients directly while actively promoting an increase in...
by Gilles Frydman | Oct 11, 2010 |
I chose Lawrence Green’s article “The Field-Building Role of a Journal About Participatory Medicine and Health, and the Evidence Needed” for the Participatory Medicine Grand Rounds, because it addresses the issues at the heart of the deep impact of...
by Gilles Frydman | Oct 5, 2010 |
I’m sure that got your attention! But that is exactly Regina’s message: We are all patients . Both collectively and individually we are the most important and the most silent stakeholder of the healthcare system. To discuss the expanding role of the patient...
by Gilles Frydman | Sep 14, 2010 |
The New England Journal of Medicine’s Health Policy and Reform just published an opinion piece about the first public release of online report cards regarding 221 of the 1,100 US cardiac surgery programs. The authors believe that this event will fuel the debate...
by Gilles Frydman | Jun 9, 2010 |
This is the first of two posts about the inspiring Patients 2.0 panel I helped organized at Health 2.0 DC. This one will explain the rationale for organizing such a panel. The second will provide a link to all the presentations and to the panelist biographies. A while...
by Gilles Frydman | May 24, 2010 |
It may be time to mention again the definition of Participatory Medicine: Participatory Medicine is a movement in which networked patients shift from being mere passengers to responsible drivers of their health, and in which providers encourage and value them as full...
by Gilles Frydman | Apr 12, 2010 |
Dr. Roni Zeiger, MD is currently Chief Health Strategist at Google where he has helped create and lead Google Health. He continues to see patients on occasional evenings and weekends at a local urgent care center. Roni earned his MD at Stanford and completed his...
by Gilles Frydman | Apr 2, 2010 |
Participatory Medicine is a movement in which networked patients shift from being mere passengers to responsible drivers of their health, and in which providers encourage and value them as full partners. This new definition devised by the board of the Society of...
Lived Experience + Expertise = ValueJuly 22, 2017
#BMJDebate tweetchat: “terms of engagement” for patient voices, noon Thursday ETJuly 12, 2017
Millenson in BMJ: When “patient centred” is no longer enough: the challenge of collaborative healthJuly 7, 2017
Webinar today, 11am ET: Increasing patient involvement in assessing new treatmentsJuly 5, 2017
What My 90-Year-Old Mom Taught Me About the Future of AI In Health Care (WBUR)June 21, 2017
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