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Open knowledge saves lives. Oppose H.R. 3699!

Note: Although currently not a member of the SPM, I have been involved, since its inception, with Tom Ferguson and others, in the creation of the e-patients white paper . I am also one of the co-founders of the SPM and one of the volunteers who created the...

How To Dump A Doctor

I have known Sharon Anderson for many years and watched her eAdvocacy evolve.  A nine year leiomyosarcoma (LMS — a very rare cancer) survivor, Sharon has tirelessly used her social work skills to help LMS patients directly while actively promoting an increase in...

Regina Holliday is not special!

I’m sure that got your attention! But that is exactly Regina’s message: We are all patients . Both collectively and individually we are the most important and the most silent stakeholder of the healthcare system. To discuss the expanding role of the patient...

Why a Patient 2.0 Panel at the Health 2.0 DC conference?

This is the first of two posts about the inspiring Patients 2.0 panel I helped organized at Health 2.0 DC. This one will explain the rationale for organizing such a panel. The second will provide a link to all the presentations and to the panelist biographies. A while...

Health Data is Useful… if it Informs Conversations

Dr. Roni Zeiger, MD is currently Chief Health Strategist at Google where he has helped create and lead Google Health.  He continues to see patients on occasional evenings and weekends at a local urgent care center.  Roni earned his MD at Stanford and completed his...

A Patient-Centric Definition of Participatory Medicine

Participatory Medicine is a movement in which networked patients shift from being mere passengers to responsible drivers of their health, and in which providers encourage and value them as full partners. This new definition devised by the board of the Society of...

Librarians and ePatients as Partners

I am thrilled to bring another guest post, this time from Luke Rosenberger, a medical librarian who has forcefully embraced social media & participatory medicine, as you’ll see. Libraries & librarians have always held a special place in helping other...

Who are you, DarthMed?

Once the world’s information was put into context, we looked beyond the keyboard, and collectively shifted to people. We focused on social context by asking questions like: Who are you? How are we connected? What is on your mind? What matters to you? Making the...

2010: The Year of Open Streams & Fax Machines

I started writing this post while watching a livestream of the LeWeb09 conference in Paris and finished it while watching a livestream of TEDxSV. Open Streams are of many kinds and shapes. They are completely changing how we consume information, news &...

Terrorized By The ‘War On Cancer’

How a Three-Word Mantra Has Undermined America’s Ability To Make Sound Healthcare Decisions with apologies to Zbigniew Brzezinski In his original article about the war on terror Brzezinski argues that the use of the term War on Terror was intended to generate a...

A Mission 2 End Diabetes

I like to invite all students, teachers, researchers, and entrepreneurs within the ‘earshot’ of this announcement to ‘listen’ carefully. If you have an idea (conceptual or a working model) of a way to help educate, treat, and/or diagnosis diabetes in rural areas with...

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