by Kevin Freiert | Apr 6, 2026
The Society for Participatory Medicine (SPM) will have a small but important presence at the upcoming World Orphan Drug Congress, June 9-11, at the Boston Convention and Exhibition Center.  Anyone who knows me knows I have a heart for the rare disease community that...
by Kevin Freiert | Apr 1, 2026
Editor’s Note: Kevin recently spoke with Cait DesRoches, who was named Principal Investigator for the Society of Participatory Medicine’s signature project, CHAMP, the Collaborative Health Care Action Measurement Platform. This is Part 2 of that...
by Kevin Freiert | Mar 27, 2026
Editor’s Note: Kevin recently spoke with Cait DesRoches, who was named Principal Investigator for the Society of Participatory Medicine’s signature project, CHAMP, the Collaborative Health Care Action Measurement Platform. Kevin Freiert: Cait, can you tell...
by Kevin Freiert | Jan 19, 2026
The Everylife Foundation for Rare Diseases (ELF) held their annual Community Congress meeting on December 11, 2025 at the National Press Club in Washington, DC.  The Community Congress acts as a coalition of collaborators with shared priorities, providing strategic...
by Kevin Freiert | Sep 10, 2025
Editor’s Note: Kevin Freiert and Dan Halpren-Ruder, MD are part of a group working to launch an exciting new SPM inititative, described here. The Promise Participatory medicine promises to enhance quality while potentially decreasing costs. By...
by Kevin Freiert | May 2, 2023
Twenty-five years ago, I learned I had a large liposarcoma in my left quadricep. I have written elsewhere about my surprise when my surgeon informed me that he and the team had changed the treatment plan. What team? Who are these people? Why wasn’t I at the team...
SPM at the World Orphan Drug ConferenceApril 6, 2026
Introducing the CHAMP Principal Investigator: Cait DesRoches (Part 2)April 1, 2026
Collaboration is the Best Medicine: Patient-Centered Collaboration Grounded in Caritas®December 16, 2025
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