by Kevin Freiert | Jan 19, 2026
The Everylife Foundation for Rare Diseases (ELF) held their annual Community Congress meeting on December 11, 2025 at the National Press Club in Washington, DC.  The Community Congress acts as a coalition of collaborators with shared priorities, providing strategic...
by Kevin Freiert | Sep 10, 2025
Editor’s Note: Kevin Freiert and Dan Halpren-Ruder, MD are part of a group working to launch an exciting new SPM inititative, described here. The Promise Participatory medicine promises to enhance quality while potentially decreasing costs. By...
by Kevin Freiert | May 2, 2023
Twenty-five years ago, I learned I had a large liposarcoma in my left quadricep. I have written elsewhere about my surprise when my surgeon informed me that he and the team had changed the treatment plan. What team? Who are these people? Why wasn’t I at the team...
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