e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
Teaching HIPAA with a Seinfeld clip
On my personal website I posted a HIPAA clarification flyer that I made up: "It's your medical record. You have a right to it. It's the law." The PDF links to a Seinfeld clip from 1996 - the year HIPAA was passed.
Insights on how the HITECH stimulus plan is working
In my previous post I noted that Vince Kuraitis and David Kibbe are running an excellent series, “Is HITECH Working?”* After a full year of increasing tensions, claims, and counterclaims, reading these posts has given me hope that it's all panned out into something...
Save lives first, *then* compete: Simple Interop for Healthcare
This post is my own expression, not an official view of the Society for Participatory Medicine. Vince Kuraitis and David Kibbe are running an excellent series, "Is HITECH Working?"* In last week's entry they linked to this slide deck by Wes Rishel and David McCallie...
Health 2.0 Europe: A Moveable Feast
Ernest Hemingway wrote that Paris is a moveable feast, not fixed in time or place. I think that describes great gatherings of any kind, including great conferences, which begin before the first speaker takes the stage and don't end simply because the participants have...
Testimony submitted to the Meaningful Use workgroup (and an urgent call for citizen participation)
There's an important call to action below. If you care about making healthcare more responsive to us, and less responsive to vendors, please read to the end. This is short. Thanks to all of you who submitted comments on this week's post, offering feedback. Here is the...
The HealthCare Pyramid – Views from the Apex and the Base
We've talked in the past about "d-patients" - doctors who become e-patients themselves. Our own founder Tom Ferguson MD was one. "D-patients" are a special case that proves, once and for all, that being an e-patient has nothing to do with rejecting the medical...
Tell HHS: What’s the role of patient generated data in Meaningful Use?
Next Tuesday Regina Holliday and I are among those testifying to the Health IT Policy Committee's workgroup on Meaningful Use. Please help me decide what to submit for my testimony. My session is Panel 2: Incorporating Patient-Generated Data in Meaningful Use of...
Health Data is Useful… if it Informs Conversations
Dr. Roni Zeiger, MD is currently Chief Health Strategist at Google where he has helped create and lead Google Health. He continues to see patients on occasional evenings and weekends at a local urgent care center. Roni earned his MD at Stanford and completed his...
What my mom takes to the doctor
I was talking to Mom (age 80) the other night, and she mentioned a document she updates regularly. She prints a fresh copy to take to every doctor visit, so they'll always have it up to date and won't have to go digging. We've never discussed topics like "the...
A Patient-Centric Definition of Participatory Medicine
Participatory Medicine is a movement in which networked patients shift from being mere passengers to responsible drivers of their health, and in which providers encourage and value them as full partners. This new definition devised by the board of the Society of...
Video message to medical students learning Medicine 2.0
Last week we posted a request from Dr. Bertalan Meskó for video messages from e-patients to his "Medicine 2.0" course. Here's my submission. (This is my first "vlog" (video blog) so the quality's not great - like everything "e," it'll improve with experience.) He'll...
Healthcare’s Privacy Problem (Hint: It’s Not What You Think It Is )
Lygeia Riccardi's post today on The Health Care Blog begins: I recently applied for life insurance. The broker, whom I’ve never met, asked about my health history. “So you’ve just had a baby,” he began. I asked him how he knew. “You’re on Twitter." Read her whole...
