e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
Mobile could be a game-changer – but only for those who get in the game.
Original title: Health 2.0 meets Ix: Susannah Fox's presentation Here are my prepared remarks for the "Navigating the New Health Care Delivery System" segment at the Health 2.0 meets Ix conference (with the lines I added to respond to other themes brought out during...
The Parable of the Wicked EMR
(guest post by David Kibbe)
Preface by e-Patient Dave: This is a story of bad data gone wild, wrong info that spreads. It starts with a story from the 1600s, which applies all too aptly to our EMR situation today, in which there are inadequate controls on data quality, and errors that leak can...
Applying Participatory Principles to EHRs/PHRs
Neither health professionals nor patients can do it alone. Let's make no mistake: We are here to participate and to help! e-Patient Dave original story of the health data transfer from his hospital EHR to Google Health PHR is remarkable in many ways and shows why...
Completing my list of billing code errors
This post will complete (I hope!) the list of errors that I discovered in the billing data that forms part of my medical records. The original post is here. As I said in the the previous post, “Let me make clear, I personally have only one agenda: to empower, equip...
Globe follow-up on my hospital’s decision to stop transmitting billing data as clinical history
Today's Boston Globe reports Beth Israel halts sending insurance data to Google. I commented: I'm the patient in question. In her original piece 4/13, Globe writer Lisa Wangsness did a terrific job of accurately capturing both the details of this complex story and...
Medicine Goes Digital: Special Report from the Economist
It couldn't have been published at a better time! The economist has a new special report on health care and technology. It states: "The convergence of biology and engineering is turning health care into an information industry. That will be disruptive [...] but also...
Remembering Doc Tom
I never knew "Doc Tom" Ferguson; he died three years ago this week, April 14, 2006. That was nine months before my diagnosis and 21 months before I discovered the movement that he founded. That team, with later additions, is here. Tom, I think of you often....
Participatory Democracy, Participatory Medicine
A sneak preview of my remarks at the "Health 2.0 meets Information Therapy" conference appears on the IxCenterBlog: Participatory Democracy, Participatory Medicine. A good discussion of the issues has already begun there and on The Health Care Blog.
Quick update on moving my data
A few items before I head off to the day job: As my hospital's CIO John Halamka posted Monday, we had a concall Wednesday night. He, Roni Zeiger of Google, my physician Danny Sands and I spoke for an hour about this entire broad topic....
E-Patient Discovers Significant Flaws in System, Spin Doctors Get to Work
It is absolutely amazing to watch the unfolding saga the moment a real patient enters real data into Google Health from his hospital's medical records. The way the marketing folks tell us, this is a seamless exercise that gets you up and running on personal health...
Electronic Health Records Raise Doubt
The Boston Globe takes note of the morass that is Google Health when connecting it to your medical records, as recounted earlier by our own e-Patient Dave here on e-patients.net.
Encoding information is a key part of I.T.
Do you know what's in your medical record? Does it contain mistakes or omissions? The extraordinary response to our April 1 post about data transfer from PatientSite to Google Health (86 comments so far) made us realize that the time has come for patients to take...
