e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
New Participatory Medicine Resources for Providers
Ever since the formation of the Society for Participatory Medicine we have discussed curating and sharing resources about participatory medicine. The resources might be videos, websites, blog posts, tutorials, and other online resources that could benefit patients,...
BREAKING: Susannah Fox is HHS’s new Chief Technology Officer
A quick first post, copied from Facebook: "Hugest news EVER! Susannah Fox is the new Chief Technology Officer at U.S. Department of Health and Human Services. How amazing is that??" My comment on Susannah's short post: "This wins my prize as the biggest...
Add Your Voice: Meaningful Use Regulations Mustn’t Leave Patient Engagement in the Dust
There are two sets of Meaningful Use draft regulations out for comment at present: (1) Proposed revisions to Meaningful Use Stage 2 (“MU2”), with comments due June 15 and (2) Proposed Meaningful Use Stage 3 (“MU3”) regulations, to be effective in 2017 at the earliest....
Announcement: SPM to advise ACP’s new Center for Patient Partnership in Healthcare
SPM co-founder and co-chair Dr. Danny Sands is appointed our first representative On Friday the following notice was distributed to members of our Society for Participatory Medicine. What a wonderful sign of medicine's growing acceptance of the importance of...
Patient Advocates Fight for Access to Medical Data: ‘It’s a Matter of Life and Death’ (KQED)
The advo-cacy of individual SPM members is gaining increasing visibility in the mainstream media, driving home the human impact of policies that help - or don't help - patients be active contributors to their families' health and care. This is excruciatingly important...
Guest post by Annette McKinnon: Power Equality: Why Is My Silo Two Miles Away?
This blog welcomes guest posts from SPM members on relevant topics. This is a blog post by Annette McKinnon, an e-patient in Canada. Annette is an enthusiastic advocate for patient inclusion in research and healthcare decision making. She has had rheumatoid...
Patient POV: Seasons Change
This came over my transom from a friend who works with a major medical school's digital publishing group. Seems both relevant, and high impact. - Casey Seasons Change by Candace Barnes i. When I left for the hospital The night was bitter cold, And snow lay on the...
Good Medicine: Choosing What to Do and What Not to Do.
The Choosing Wisely® campaign was launched in 2012 by the ABIM Foundation to encourage patients and clinicians to think about the tests and treatment choices they are implementing or requesting, and to avoid those tests that have proven to be overused and...
#NoMUwithoutME: Primary School Edition
Created using Bitstrips. Text engine: Up Goer Five, "Can you explain a hard idea using only the ten hundred most used words? It's not very easy." Bottom line: When you go to the doctor, any doctor, always ask for your records. Ideally,...
NY Times editorial on forces who “knowingly interfere” with health info exchange
It's often hard for our movement to get major media attention, but it looks like it's happening: things are heating up on the "empire strikes back" front that we reported on twice this week. Friday's New York Times, page A30, carried an editorial Roadblocks to Sharing...
“No MU without ME”: join the campaign to fight health data hiding
Several edits made, 1-2pm There is a movement underway - a movement for patient liberation and autonomy - and the empire is striking back, interfering with our efforts. We - the whole movement, not just SPM - need your help. If you're in a hurry, skip down to the Do...
PHI Data Breaches May be Increasing, But It’s Not Impacting Our Sharing
According to a new study in JAMA, data breaches into people's protected health information (PHI) records are increasing: "[The] study that found almost 30 million health records nationwide were involved in criminal theft, malicious hacking or other data breaches over...
