e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
Patients Invited! Health Informatics Conference seeks Patient Participation
An international conference addressing information technology and communication in health (ITCH) will be held February 26 – March 1, 2015 in Victoria, British Columbia, Canada. Professor Stephen Hawking’s statement, “we learned to talk, we learned to listen, we...
New in JoPM: “I No Longer Have to Go to See the Doctor:” How the Patient Portal is Changing Medical Practice
SPM co-founder Charlie Smith (Charles W. Smith, MD) was "Doc Tom" Ferguson's own physician, and currently serves as co-Editor-in-Chief of our Journal of Participatory Medicine. He's just published a brief but important editorial in the journal. It begins (emphasis...
Uri Goren TedxHIT video: Patients are Not Empty Carriages
Uri Goren is the General Manager of e-Pochonderiac a blog about healthcare and digital technology and also a digital health consultancy and agency working in Israel to support digital health in the local health and pharmaceutical industry and to promote the roll of...
Via @Cancer101: 10 things every patient needs to know
A handy one page chart from our Past President Sarah Krug through Cancer101 summarizes the best way to become an e-patient: http://cancer101.org/wp-content/uploads/2012/06/top-10.pdf Here are a few points: You have a story to tell. Don't be afraid to tell it. Make...
JAMA: Reducing the Trauma of Hospitalization
Thanks to member Marilyn Mann for sharing this free article in JAMA with a suggestion on how to better personalize the patient's hospital stay - really sensible suggestions. One reads them and wonders why they are not in place already. An excerpt: Stress is also toxic...
Times science reporter asks: “Ever hit a paywall?”
Thanks to Twitter friend @CourageSings for this tip. I retweeted it, but I know a lot of readers of this blog will answer "yes" and might not see the tweet: Ever hit a paywall trying to access a scientific paper? For a story, would love examples from non-scientists....
Aging & e-Patients: Challenges and Opportunities in Geriatrics
Guest post by SPM member Leslie Kernisan, whose words first appeared here in a September interview at Medicine X: "Leslie Kernisan (Twitter @GeriTechBlog), a geriatrician who’s deeply interested in and committed to enabling elders and caregivers through patient and...
OpenNotes & Transparency: Ongoing conversation
OpenNotesOne of our MD members, Peter Elias, tipped us off on our listserv to a post on KevinMD.com from a clinician who was expressing concern about the wisdom of OpenNotes, and fully sharing information with patients in general. Peter posted a comment, which we...
The Iceberg Waiting for Your Health Care Data
The Heartbleed web security exploit was first publicized several weeks ago. In the time since then, numerous web-based services have let their users know (some more clearly than others) whether and how their data security was compromised by this OpenSSL flaw that has...
New ACP center will foster physician-patient collaboration : Internal Medicine News
4 minutes video in which Dr. Steven Weinberger describes why it is important to include patients in creating guidelines and decision-making processes. New ACP center will foster physician-patient collaboration : Internal Medicine News. (requires registration. I just...
Health Information Exchange: We’re not there yet
This post was originally a comment by SPM member Jeffrey Harris on our C-ME post from April 3, 2014. Jeffrey has a long history as a clinician, a health IT strategist, and as a patient. We thought his commentary deserved its own post. I had the opportunity to moderate...
It’s time to C-ME (see me): Consumer Mediated Exchange
By Mark Branning and Brad Tritle Mark Branning is Principal at mdb Healthcare IT Solutions, Adjunct Professor at National University, a member of the HIMSS Connected Patient Committee and co-chair of the Connected Patient Community. Mr. Branning has spent 33 years...
