e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
JAMA: Reducing the Trauma of Hospitalization
Thanks to member Marilyn Mann for sharing this free article in JAMA with a suggestion on how to better personalize the patient's hospital stay - really sensible suggestions. One reads them and wonders why they are not in place already. An excerpt: Stress is also toxic...
Times science reporter asks: “Ever hit a paywall?”
Thanks to Twitter friend @CourageSings for this tip. I retweeted it, but I know a lot of readers of this blog will answer "yes" and might not see the tweet: Ever hit a paywall trying to access a scientific paper? For a story, would love examples from non-scientists....
Aging & e-Patients: Challenges and Opportunities in Geriatrics
Guest post by SPM member Leslie Kernisan, whose words first appeared here in a September interview at Medicine X: "Leslie Kernisan (Twitter @GeriTechBlog), a geriatrician who’s deeply interested in and committed to enabling elders and caregivers through patient and...
OpenNotes & Transparency: Ongoing conversation
OpenNotesOne of our MD members, Peter Elias, tipped us off on our listserv to a post on KevinMD.com from a clinician who was expressing concern about the wisdom of OpenNotes, and fully sharing information with patients in general. Peter posted a comment, which we...
The Iceberg Waiting for Your Health Care Data
The Heartbleed web security exploit was first publicized several weeks ago. In the time since then, numerous web-based services have let their users know (some more clearly than others) whether and how their data security was compromised by this OpenSSL flaw that has...
New ACP center will foster physician-patient collaboration : Internal Medicine News
4 minutes video in which Dr. Steven Weinberger describes why it is important to include patients in creating guidelines and decision-making processes. New ACP center will foster physician-patient collaboration : Internal Medicine News. (requires registration. I just...
Health Information Exchange: We’re not there yet
This post was originally a comment by SPM member Jeffrey Harris on our C-ME post from April 3, 2014. Jeffrey has a long history as a clinician, a health IT strategist, and as a patient. We thought his commentary deserved its own post. I had the opportunity to moderate...
It’s time to C-ME (see me): Consumer Mediated Exchange
By Mark Branning and Brad Tritle Mark Branning is Principal at mdb Healthcare IT Solutions, Adjunct Professor at National University, a member of the HIMSS Connected Patient Committee and co-chair of the Connected Patient Community. Mr. Branning has spent 33 years...
From BMJ: The interdependent roles of patients, families and professionals in cystic fibrosis
Our Member Beth Nash MD recommends this article: This is an incredible article in BMJ Quality & Safety about how patients, families and professionals can (and need to) work together to improve care (in this case, the care of cystic fibrosis patients). Here's a...
New paradigm in data sharing and analysis?
A Perspectives piece I wrote was published this week by iHealthBeat - Unlocking the Power of Health Data. In it I argue for patient-controlled sharing of rich data, as opposed to HIPAA-regulated stripping of identifiers in order to eliminate the risk to patient...
SPM loves Flip The Clinic – we’re an “ally”
The Society for Participatory Medicine enthusiastically supports this new, transformational initiative from the Robert Wood Johnson Foundation: Flip the Clinic. (Don't you love the logo? Turning the clinic on its ear?) It's utterly engaging and empowering to patients,...
An angry veterinarian says “I don’t understand…” (Reprise five years later)
It's five years since the ARRA/HITECH legislation was passed that pretty much mandates that American medicine has to computerize. Policies created since then have been enormously effective at moving adoption forward. We still need vast improvements of the user...
