e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
WikiProject Medicine: med students join in producing high quality Wikipedia articles. (You can, too.)
Significantly expanded, below the video, an hour after the first post. Peter Frishauf, member of the editorial board of our journal, has brought what is to me the most exciting news for participatory medicine since the OpenNotes project. Importantly, this news may...
“How collaborating with patients improves hospital care”: Guardian
Care designers and fans of patient-centered care, listen up: a hat tip to Danish friend Malene Louise Djurhuus Laubinger for this, from The Guardian: How collaborating with patients improves hospital care. We've often said on this blog that participatory medicine can...
“Health cometh not from healthcare”
We often say here that clinicians should welcome activated patients. Hand in glove with that, we must also say: Yo, patients: get activated! Know what works, and act on it! Huzzah to Swedish SPM member and Parkinson's patient Sara Riggare for this, on Facebook, which...
Rare Diseases: Powered by Patients
A guest post by Wendy White of Siren Interactive in honor of Rare Disease Day: Can empowered patients drive change in healthcare? Take a look at the progress that has been made in the rare disease community over the last 30 years—much of it spearheaded by patients and...
JAMA, patient centered medical homes, and the ongoing cost/quality conundrum
Today - February 26, 2014 - the Journal of the American Medical Association (JAMA) published the results of a pilot study (note: click the link, and then click the JAMA Reader link button on the right side of the page for the full text) of a volunteer group of...
Emory study: “PHR resulted in significantly improved quality of care and use of services”
Long-time readers will recall a hallway conversation I had at a conference in 2011 with Silke von Esenwein PhD of Emory University's Center for Behavioral Health Policy Studies, who was presenting a poster with preliminary results of a study in process. The post was...
Crowdsourcing Curriculum on Consumer Health Informatics
What do you think should be included in a course in Consumer Health Informatics (CHI)Â in a graduate medical informatics program? I know a graduate curriculum begging for input from the most engaged and empowered consumers, patient advocates, and technology and health...
Twitter Empowers Patients to Seek and to Speak Out
The ability to write something meaningful in140 characters, including a shortened URL, is the basis of Twitter. Over 500 million tweets go out every day to individuals who enjoy the simplicity, functional design, and speed of delivery that twitter offers, along with...
French Wikipedia now contains e-patient
Edited an hour later - I had the wrong French speaking e-patient! On Facebook today Christine Bienvenu @TinaBurger posted this news on my timeline: ... with the help of a Swiss colleague who works at the Geneva University Hospitals we were able to get the French...
Patients to Have Right to Access Lab Test Result Data – Finally!
The lab test result data access rule is finally final. See the HHS press release and the final rule, which is scheduled to be published on Thursday. What does this mean? In a nutshell, patients in all 50 states are now guaranteed the right to access the results of...
TMIT, Dr. Chuck Denham, and Patient Safety’s First Scandal?
For e-patients and others who list themselves on Texas Medical Institute of Technology's SpeakerLink, this very meaty post by Society of Hospital Medicine founder and world-renowned leader of the hospitalist movement Dr. Bob Wachter is required reading. After which,...
Monthly introduction to e-Patients.net
This is our monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine. Follow the Society on Twitter (@S4PM), Facebook, and LinkedIn.  Here's how to become a Society member, individual or corporate. Our publications: This...
