e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
JAMA, patient centered medical homes, and the ongoing cost/quality conundrum
Today - February 26, 2014 - the Journal of the American Medical Association (JAMA) published the results of a pilot study (note: click the link, and then click the JAMA Reader link button on the right side of the page for the full text) of a volunteer group of...
Emory study: “PHR resulted in significantly improved quality of care and use of services”
Long-time readers will recall a hallway conversation I had at a conference in 2011 with Silke von Esenwein PhD of Emory University's Center for Behavioral Health Policy Studies, who was presenting a poster with preliminary results of a study in process. The post was...
Crowdsourcing Curriculum on Consumer Health Informatics
What do you think should be included in a course in Consumer Health Informatics (CHI)Â in a graduate medical informatics program? I know a graduate curriculum begging for input from the most engaged and empowered consumers, patient advocates, and technology and health...
Twitter Empowers Patients to Seek and to Speak Out
The ability to write something meaningful in140 characters, including a shortened URL, is the basis of Twitter. Over 500 million tweets go out every day to individuals who enjoy the simplicity, functional design, and speed of delivery that twitter offers, along with...
French Wikipedia now contains e-patient
Edited an hour later - I had the wrong French speaking e-patient! On Facebook today Christine Bienvenu @TinaBurger posted this news on my timeline: ... with the help of a Swiss colleague who works at the Geneva University Hospitals we were able to get the French...
Patients to Have Right to Access Lab Test Result Data – Finally!
The lab test result data access rule is finally final. See the HHS press release and the final rule, which is scheduled to be published on Thursday. What does this mean? In a nutshell, patients in all 50 states are now guaranteed the right to access the results of...
TMIT, Dr. Chuck Denham, and Patient Safety’s First Scandal?
For e-patients and others who list themselves on Texas Medical Institute of Technology's SpeakerLink, this very meaty post by Society of Hospital Medicine founder and world-renowned leader of the hospitalist movement Dr. Bob Wachter is required reading. After which,...
Monthly introduction to e-Patients.net
This is our monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine. Follow the Society on Twitter (@S4PM), Facebook, and LinkedIn.  Here's how to become a Society member, individual or corporate. Our publications: This...
Patients-included Pharma? Disingenuous, and busted.
Prolog by e-Patient Dave: "Patients Included"Â was created by Lucien Engelen in the Netherlands for his initiative to have patients speak at all medical events. We in the patient community are taking it everywhere we can. But sometimes - as in this story - someone...
A neurosurgeon confronts his mortality: lessons in statistics and living while you can
Here's a new "must read" for people with a grim prognosis, submitted by Twitter friend @Scanman (Vijay Sadasivam), from the Tamil region of India: How Long Have I Got Left?, by Stanford neurosurgeon Paul Kalanithi. Seven years ago that was my situation. This was the...
Evernote is my EMR
This post originally appeared on NickDawson.net here. Spoiler alert: I’m not dying and there doesn’t appear to be anything major wrong with me. I know, you hate spoilers. But I thought I’d get that one out of there way. It makes the rest of this considerably...
Prize-winning Consumer Reports app seeks study participants: Hip or Knee Replacement
For U.S. residents -Â I spoke last month at a health price transparency conference in Washington, sponsored in part by Robert Wood Johnson Foundation. In a side session we saw presentations by the winners of the Health 2.0 Developer Challenge for shopping...
