e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
Patients to Have Right to Access Lab Test Result Data – Finally!
The lab test result data access rule is finally final. See the HHS press release and the final rule, which is scheduled to be published on Thursday. What does this mean? In a nutshell, patients in all 50 states are now guaranteed the right to access the results of...
TMIT, Dr. Chuck Denham, and Patient Safety’s First Scandal?
For e-patients and others who list themselves on Texas Medical Institute of Technology's SpeakerLink, this very meaty post by Society of Hospital Medicine founder and world-renowned leader of the hospitalist movement Dr. Bob Wachter is required reading. After which,...
Monthly introduction to e-Patients.net
This is our monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine. Follow the Society on Twitter (@S4PM), Facebook, and LinkedIn.  Here's how to become a Society member, individual or corporate. Our publications: This...
Patients-included Pharma? Disingenuous, and busted.
Prolog by e-Patient Dave: "Patients Included"Â was created by Lucien Engelen in the Netherlands for his initiative to have patients speak at all medical events. We in the patient community are taking it everywhere we can. But sometimes - as in this story - someone...
A neurosurgeon confronts his mortality: lessons in statistics and living while you can
Here's a new "must read" for people with a grim prognosis, submitted by Twitter friend @Scanman (Vijay Sadasivam), from the Tamil region of India: How Long Have I Got Left?, by Stanford neurosurgeon Paul Kalanithi. Seven years ago that was my situation. This was the...
Evernote is my EMR
This post originally appeared on NickDawson.net here. Spoiler alert: I’m not dying and there doesn’t appear to be anything major wrong with me. I know, you hate spoilers. But I thought I’d get that one out of there way. It makes the rest of this considerably...
Prize-winning Consumer Reports app seeks study participants: Hip or Knee Replacement
For U.S. residents -Â I spoke last month at a health price transparency conference in Washington, sponsored in part by Robert Wood Johnson Foundation. In a side session we saw presentations by the winners of the Health 2.0 Developer Challenge for shopping...
What to do if your doctor wouldn’t fax YOU your records…
Our member Keith Boone with a great explanation of what to do when a provider's office gives you the "I can't do this because of HIPAA" about giving you your records: http://motorcycleguy.blogspot.com/2014/01/knowing-who-to-talk-to-is-half-battle.html A little teaser...
e-Patient Lisa Adams
In this guest blog post, member Carly Medosch describes Lisa Adams whom she knows from social media. Lisa Adams was diagnosed with stage 4 breast cancer and documented her journey in social media. In another post below we describe the media firestorm that was caused...
Husband-wife pieces in NY Times and The Guardian break ethics and lack a clue (re @AdamsLisa)
Update 9:20 pm ET: see important additions at the subhead below. When I wrote this today I didn't have time to dig for excellent links like those. Thanks to Susannah Fox's Twitter feed. One of the best social media patient figures I met, long ago, was @AdamsLisa -...
Hot Trends for 2014: Care Collaboration and Coordination Top the List
In 2014, the baby boomers (individuals born between 1946 and 1964) will turn 65 at a rate of nearly 10,000, individuals a day. Over the next five years 17 million baby boomers turn 65. That’s a lot of people retiring, joining the Medicare system developing chronic...
Response to “We need to talk about TED” from an evangelist’s perspective
The next day I made a correction per Dick Morris's comment, and toned down some of my adjectives to be more suitable outside of our private listserv. Dr. Bratton, of course we welcome dialog. In our Society for Participatory Medicine, part of our work is to change...