e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
Matthew Katz on 23andMe: “Return to Sender, Genome Unknown: Seven Reasons I Will Return My Personal Genome Kit”
Radiation oncologist Matthew Katz is a lifetime member of SPM who blogs regularly for the American Society of Clinical Oncology and Mayo Clinic Social Media Health Network. In this guest post he offers his view of 23andMe, the personal genomics service that's in the...
My Reasons for Thanksgiving: On The Ultimate Loss of Control, Unclear Diagnoses, and Being a Patient
As we know participatory medicine is based upon mutual respect: the clinician respecting the self-knowledge, experience, and wisdom that the patient brings to the collaboration and the patient respecting the knowledge, clinical experience, wisdom, and technical skills...
Thanks from the Philippines
In this guest blog post, member Beatrice Tiangco describes some of the pain and suffering in the Philippines after the typhoon and expresses her gratitude for the SPM, local community and overall support. Beatrice Tiangco is a practicing Medical Oncologist from the...
Susannah Fox: Field Guide to Pew’s new report “The Diagnosis Difference”
Susannah Fox of Pew Research had an important new study published today about the highest cost part of the healthcare budget: patients with one or more chronic conditions. If you care about the suffering of patients with never-ending conditions or the suffering of the...
For whose benefit do boards certify? (Updated!)
Update Nov. 26: great news! In today's NY Times is Gynecologists May Treat Men, Board Says in Switch! Their reason for the change is still totally doctor-centric - even the mention of patients is about "the doctor-patient relationship," not about the patients' best...
Regina Holliday: The Walking Gallery film
Regina Holliday and her Walking Gallery project are featured in a new short film. Here it is: The Walking Gallery of Healthcare from Eidolon Films on Vimeo. How a movement begins...
e-Patient Manifesto: “Patients Included”
In 1517, Martin Luther nailed his “Ninety-Five Theses” to the wooden doors of Wittenberg Cathedral, sparking a global reformation of the Christian faith that’s still going on today. In the 1950s and 1960s Dr. Martin Luther King Jr. worked to drive inclusion for all in...
Mobile, social, health, care
A clinical trial in Kenya confirmed that human kindness is the secret ingredient to health and mobile phones are an ideal delivery system. Well, that's my interpretation. Here's the gist: Taking your meds is essential to maintaining your health when you live with a...
Summit on Identifying Family Caregivers on Medical Records – by Suzanne Mintz
Below is a guest post by Suzanne Mintz, founder Family Caregiver Advocacy about a summit where patients and caregivers were an integral part of the healthcare redesign process. More and more you will see us featuring meetings and conferences that include patients and...
Author Anna Quindlen asks medical schools: do you really know your patients?
Any of us would probably have paid to be at the gathering of over 1000 medical school deans, faculty and residents at last week's American Association of Medical College's (AAMC) meeting to hear Anna Quindlen deliver her speech, Healthcare in an Age of Information:...
Patients in Power conference in Athens
Latest update below: 7:39 a.m. ET On my personal site I'm blogging about the second annual Patients In Power conference happening today and tomorrow in Athens, Greece, organized by SPM member Kathi Apostolidis. 7:39 a.m. ET - The European Charter of Patients Rights...
Monthly introduction to e-Patients.net
This is our monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine. Follow the Society on Twitter (@S4PM), Facebook, and LinkedIn. Here's how to become a Society member, individual or corporate. Our publications: This...
