e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
Let’s bring “e-patient” to geriatrics
At the extraordinary Stanford Medicine X conference I connected with SPM member Leslie Kernisan (Twitter @GeriTechBlog), a geriatrician who's deeply interested in and committed to enabling elders and caregivers through patient and family engagement. We recorded a...
SPM is hiring a Development Director
The Society for Participatory Medicine is hiring and looking for an experienced Director of Development. Are you interested or do you know someone in your network who might be? Here's the information & instructions on how to apply:...
Expanding HIPAA Rights: Lab Test Results to Come Under the Big Tent
[Note added by e-Patient Dave: this is such a big deal that I'm taking the rude step of adding highlights [bold] to Attorney Harlow's post!] We're inching closer to promulgation of final regulations that will likely make all lab test results more easily accessible to...
Monday: Watch the Consumer Health IT Summit live. Our time is here!
Monday Sept. 16 is the 2013 Consumer Health IT Summit. That means we, the patients, are the focus - we and our data, of course! - along with the providers (doctors, nurses, practices, hospitals) who serve us. You can watch live, online, without prior registration. But...
Flip the Flip
Guest blogger Natasha Gajewski participated in the Flip the Clinic meeting at the Robert Wood Johnson Foundation. Below are her observations about the meeting and a thought you might consider. Â Natasha is an e-Patient and the developer of Symple, a symptom journal for...
New #S4PM tweetchat series kicks off Saturday 9/14 at 3pm Eastern
SPM is launching a tweetchat series this Saturday, Sept. 14 at 3pm Eastern, 7pm GMT (use The World Clock [link: http://www.timeanddate.com/worldclock/converter.html] to find your time zone). The chat will be led by Casey Quinlan, @MightyCasey; Ileana Balcu,...
Monthly introduction to e-Patients.net
This is our monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine. Follow the Society on Twitter (@S4PM), Facebook, and LinkedIn.  Here's how to become a Society member, individual or corporate. Our publications: This...
Beth Israel Deaconess FAQ for their patients reading OpenNotes
Clarification 9/7: The FAQ posted below is of course authored by my hospital, not by me. Several people misunderstood so I edited this and the headline. On Wednesday I posted about the roll-out of OpenNotes to over a million patients and families. That post arose when...
The OpenNotes project goes wide: a million patients and families enabled by information!
Updated Sept. 6: I'd forgotten that as we posted in June, Cleveland Clinic announced open access too, adding a half million patients to the total. Big news is emerging from the OpenNotes® project: big institutions are making patient access to the medical record...
Health Plan Member Engagement and Empowerment Index: The EveryMove 100
There's a new index in town. This week's entrant is the EveryMove 100, a ranking of health plans across the US "based on how they engage with and empower consumers to manage their own health." according to the presser. (EveryMove is a health rewards based marketing...
Screw HIPAA: Here’s a Look at My Doctor’s Office
A few months ago, I complained about the layout of one of my doctor's offices. There's a rough layout drawing of the office waiting area to the side there. I'm standing just in front of the number 1, while people are sitting along the wall behind me. Do you see the...
Erin Moore’s speech: What if CF had a Collaborative Care Network?
SPM member Erin Moore (@EKeeleyMoore) is one heck of an activist parent. She sees the future, she has a stake in it - a kid with a chronic disease - and like many of us, she's not waiting around for someone else to make it happen: she's engaged in creating the future...