e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
Hey lurkers – hi! Step right up, speak up here!
For a couple of years I've been wondering when controversy and snark would hit this movement. Looks like it showed up this morning. Today one of our members posted on our members-only email group: I was on a phone call recently with some colleagues in health IT and I...
New SPM Members Bring Magic Levers and Untanglers for Healthcare
This listserv exchange between new Society for Participatory Medicine members is a nice example of how "newbie" e-patients often come to us with decades of experience and well-honed (and well-blogged) philosophies of what healthcare should be and can be. From:...
ONC Video: It’s time healthcare caught up with the way we live the rest of our lives
I’ve been in healthcare for awhile, yet must admit that a lot of information packaged for patients/consumers is pretty dry and not too creative. Content, often developed by health professionals or educators, can be medical-heavy and design-light. My litmus test when...
Eve Harris: Health coaches and involving patients in primary care decision making
Another blog post from Eve Harris on KQED describing the use of medical assistant health coaches to help patients make and keep their health care goals. http://blogs.kqed.org/stateofhealth/2012/07/26/primary-care-efforts-to-involve-patients-in-decision-making/ Go...
Benoit Bisson: Being a patient knows no boundaries
Guest blogger Benoit Bisson, a kidney cancer patient, journalist and SPM member in Montréal, offers an international perspective on the participatory medicine movement. He's @Benoit_Bisson on Twitter; his blog is BenoitBisson.com. Guest post submissions are welcome...
SUITS and VOMIT: fun at the ABIM Foundation Forum
As noted a few days ago, I've been at the ABIM Foundation Forum. This is, frankly, the most heartening event I've been to: the Foundation people are working hard to generate real transformation in the practice of medicine, including the new Choosing Wisely campaign...
XX in Health: Women Leading Healthcare
Here's a video that had me at hello -- it leads with data, then follows with insights from people I admire: If you're intrigued, look for other posts about women in healthcare on Twitter by searching for the hashtag #xxinhealth. And for more wisdom from women in...
Input please for ABIM Foundation Forum: Choosing Wisely in an Era of Limited Resources
What is the role of the patient? As we noted in April, TEDMED and the Robert Wood Johnson Foundation have designated "The Role of the Patient" as one of the twenty TEDMED Great Challenges for 2013, and the TEDMED site will host a big conversation about it in the...
About Healthcare’s Online Communities
From Hive Strategies, an interesting blog post talking about the healthcare"intimate public" - the communities that patients with a certain condition form with each other. An important part of being an e-patient is being engaged with others like you - supporting and...
It’s not about being online. It’s about being empowered and engaged – thinking and speaking up.
On Monday Ileana Balcu posted about a great new article by SPM member Eve Harris, whom we've covered before. Eve's post is a superb depiction of how an empowered patient - someone who knows how to think for themselves and speak up - will engage in their case. These...
What Do ‘Engaged’ Patients Do?
Member Eve Harris wrote another great blog post for KQED - Public Media for Northern California. It is about one woman's personal decision on how to treat her breast cancer. A short extract below: Basila is strong evidence that individuals react differently to their...
“What’s in YOUR record?” Make data quality fun: play along in ONC’s video challenge!
Think everything in your medical record is spotless and flawless? Think again: almost everyone I know who's checked their record has found flaws, omissions, orders that were never carried out. There's a lot we can do, e-patients, engaged consumers, to improve the...
