e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
SPM Rolls Out Participatory Seal Program
At Health Datapalooza today in Washington, DC, the Society for Participatory Medicine announced the live beta launch of our Seal Program. The SPM Seal will be awarded to clinicians and to patients who make four simple, achievable, but powerful participatory...
ONC Meeting with Patients at the White House
Member Keith Boone about the meeting at the White House with ONC and Regina Holliday, e-Patient Dave and others: http://motorcycleguy.blogspot.com/2012/06/secret-white-house-meetings-with.html Discussions were about giving data to patients, security, privacy,...
Monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine
This is our monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine. Follow the Society on Twitter (@S4PM), Facebook, and LinkedIn.  Here's how to become a Society member, individual or corporate. Our publications: This blog...
Nancy Finn: Are You Getting What You Paid For and Is It Worth the Money?
SPM member Nancy B. Finn shares some recent research findings that confirm what many of us suspected about the value patients get out of health care in the U.S. When we go to the supermarket or the store to make a purchase, most of us are concerned about getting what...
A powerful e-patient story – parents search for what ails their son
From SPM member Gangadhar Sulkunte: This article is very powerful. How the parents had to go through genomic hell to track down which genetic ailment was killing their son. Lots of useful information on genetic disorders, gene mutations here:...
A “de-marketing strategy”
J.R. Schmitt tipped me off to a fascinating article published in 1997 (!) about a "de-marketing strategy" for the use of general anesthesia in dentistry in the UK: De-marketing: Putting Kotler and Levy's Ideas into Practice, by Steven Lawther, Gerard B. Hastings, and...
“A growing movement of e-patients”: Hugo Campos on NPR’s Morning Edition & “Shots”
Quick update before I go out and play: SPM member @AfternoonNapper just notified me that two more of us, Katherine Kelly Leon and Sharonne Hayes MD, are also on NPR today! Patients Find Each Other Online To Jump-Start Medical Research I awoke this holiday morning to a...
“Check the box for e-Patient”
From SPM member Keith Boone, author of the e-Patient Rap, whose first verse I did in my TEDx Maastricht talk: My daughter did something interesting a couple of weeks ago when we went to her pediatrician's office. We asked for her records, and she told the clerk to...
Send a message to the White House: Show strength of support for Open Access
Update 1 June 3: if you're not familiar with the Open Access issue, start with Peter Schmidt's comment below, citing a 2008 journal article on the issue, by a former editor of the British Medical Journal. ___________Â Update 2 June 3 @9:50 AM PST: we are only 354...
Cleveland Clinic’s John Sharp with a review of Social Media in Healthcare
Member John Sharp from Cleveland Clinic has a great review of Social Media in Health Care in the last two years. The Society for Participatory Medicine is also mentioned....
What Do Aggregators Know About Me and Why It’s Important
Guest post from SPM member Adrian Gropper, MD of HealthURL.com. Information is the foundation for patient engagement. Nothing about me without me. Although personal medical information starts out with your various institutions and doctors, it doesn’t just stay with...
KQED blog on Hugo Campos and his quest to access his data
KQED blogger and SPM member Eve Harris has written a great brief piece on Hugo's desire to access the data from his implanted defibrillator, beginning: Hugo Campos was apologetic about postponing a scheduled interview with me two weeks ago. In a midday email he wrote,...