e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
Millenson on THCB: Will Regina Holliday Become Health Care’s Rosa Parks?
[Reminder: The place to register an official comment to the government is this page on Regulations.gov. Monday May 7 is the last day.] How slowly culture changes. In September 2009, at the founding of our Society for Participatory Medicine, the cover of Health...
Monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine
This is our monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine. Follow the Society on Twitter (@S4PM), Facebook, and LinkedIn.  Here's how to become a Society member, individual or corporate. Our publications: This blog...
SPM’s responses to the proposed rules for Meaningful Use Stage 2
Afternoon additions: You too can submit your opinion on the official public comment site. They even allow uploading attachments. As I just told a friend on Facebook: "How often, before this administration, did Washington make it truly easy for anyone to tell their...
International survey for chronic disease patients
Doctoral student Mohamed Chekli met SPM member Matthew Katz MD (radiologist), and asked for help with a survey: Would you please put me in touch with people in your network who are offering personal health records (or patient portals) to individuals dealing with...
“With this the AHA admits that it does not know what an EHR was and is meant for”
Cross-posted from the ICMCC blog, a post by its chairman, Lodewijk Bos, a Dutch cancer patient who is a great advocate for information, technology, and patient engagement. The ICMCC news feed is a terrific daily compilation of health IT news. A long-time advocate for...
Important ONC/NeHC Webinar, noon ET – the Patient’s Role in EHR Data Quality (SPM speaking)
I should have announced this long ago but I've just been too busy for my own good. Go register now! FREE! Attendance is limited to 1,000. (It'll be archived online of course.) Or click the graphic to register: Why this matters: Data quality is important, and it's not...
American Hospital Association declares war on patient empowerment. Please act.
[Reminder: The place to register an official comment to the government is this page on Regulations.gov. Monday May 7 is the last day.] ____________ New, 11pm ET on May 2: See Regina Holliday's addition at bottom. Evening addition: In a comment below, SPM policy chair...
Making Sense of “Patient-Centered Care”
The Journal of Participatory Medicine received a nice recommendation from Paul Levy, former CEO of Beth Israel Deaconess Medical Center, in his blogpost on where to find reliable information about patient-centered medicine. Levy also recommends a new non-profit site...
Globe article on EMRs: status and the safety issue
In today's Boston Globe, the cover story for the daily "G" magazine is "Record-Keeping 2.0," by Chelsea Conaboy (@cconaboy). Subtitled "Medical care is shifting to electronic data files - but how safe is it?", it's a good mass-market introduction to the subject and...
Let’s Get Medical Info as Good as Our Pets Get! — A Petition
SPM member Ken Farbstein sent us this invitation to help persuade the Office of the National Coordinator for Health Information Technology to include printed summaries of doctor visits in the ONC's definition of meaningful use. After our pets go to the veterinarian,...
AHRQ Cancer Resources to Help Understand Treatment Options
From Nadia Dawson at Ogilvy, the PR firm that's handling AHRQ (the Agency for Healthcare Research & Quality) - ---------- Forwarded message ---------- From: Nadia Dawson Date: Wed, Apr 25, 2012 at 6:34 PM Subject: Cancer Resources to Help Understand Treatment...
Applying Tom Gilbert’s performance improvement framework to the “compliance” issue
I participated today in a webinar  hosted by eHI. My slides arrived (ahem) too late to be broadcast, so I posted them online, with comments, on my site. In case you don't click through to the whole thing, here's a quick excerpt: Long ago in another career I learned...
