e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
Save the Date: PCORI’s National Patient and Stakeholder Dialogue
We encourage our readers to attend this February 27 event and help PCORI shape its agenda for clinical effectiveness research. You can find a link to their draft priorities by clicking to this page. Registration for the forum is required; please see the link in the...
An e-patient issues an RFP, saying what’s important to him
It's funny how things turn out sometimes. Lately I've written a lot here about e-patients taking an active role at a new level in healthcare, not just engaging in their care, but actually defining what it should be. Well, wouldn't you know it, life has provided me...
Helen Palmquist: Supporting my cyber-sisters with words of hope
Guest blogger Helen Palmquist is a member of the Ovarian Cancer National Alliance support community, hosted by Inspire. She lives in suburban Chicago. I was diagnosed with ovarian cancer at age 41, in the pre-Web days of 1987. From my hospital bed after my first...
Alex Albin: Why patients aren’t managing their care (Healthcare
A note on the SPM member listserv from Alexandra Albin, frequent guest contributor here - ---------- Forwarded message ---------- From: Alexandra Albin Here is an article I came across with some relevance to S4PM. 4Â Reasons why Patients aren't managing their care...
What’s your health care dream?
#whatifhc in #TheWalkingGallery Note: This is two posts in one -- scroll down to read Regina Holliday's point of view. From Susannah Fox: For me, Twitter is a free-wheeling space where people dance with ideas. Anyone is welcome to jump into the spotlight...
New editorial series in JoPM asks the tough questions
A new Journal of Participatory Medicine tradition has just launched. Our monthly editorial series will tackle the toughest questions of participatory medicine, from both the patient and the provider side. The first installment, by Joe and Terry Graedon, is titled...
Katie Matlack: iOS medical peripherals: convenient and connected
This guest post from Katie Matlack (reposted from the free site Software Advice) launches a new section of e-Patients.net: "PM Tech." This special branch of e-patient resources is gaining importance as smartphones and tablets become ever more mainstream. Devices that...
Mayo Proposal: Make Med Students Understand Costs?
Corrected 6:50 pm - the Medical Professionalism Blog belongs to the ABIM Foundation, not to the Board. ABIM is the American Board of Internal Medicine, one of the two U.S. organizations that certifies internal medicine physicians. Their The ABIM Foundation's Medical...
Opening the Door to Closeted Science
NOTE: We're happy to welcome back Sarah Greene, one of the founding members in 2009 of SPM and its journal. She left a while ago for London, where she's continued her work at the leading edge of thought about medical knowledge. Sarah is ahead of most of us. Only in...
“I have a right to my damn data”: Hugo Campos in the Mercury News
Well, SPM's resident ICD patient is getting quite a lot of attention these days! First a feature in MIT Technology Review in November, then his TEDx video was released this month, leading to a spot on NPR's On The Media on 1/20, and now he's on the front page of...
TED talk on doctors’ mistakes
TED.com has posted physician Brian Goldman's very engaging presentation from November 2011, "Doctors make mistakes: can we talk about that?" Goldman discusses the impossibly high expectations we all have of doctors -- doctors themselves especially -- and calls for a...
“That means there is hope” – Atul Gawande at #CISummit
Edits made in the discussion at bottom, 1/27. Quick post from the media table at today's Medicare Innovation Summit: Deservedly famed surgeon & author Atul Gawande just put together a bunch of thoughts into a potent summary. Paraphrasing from memory: There is a...
