e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
Two great posts on how patients can be responsible for their care
In the Society for Participatory Medicine we talk about patients shifting "from being mere passengers to responsible drivers of their health." Two posts Tuesday from SPM members provide some great specifics. First, orthopedist @HJLuks published Your Role in Avoiding...
Gimme My Damn Data: cancer patient Xeni finds a “ghost penis” in her bone scan
This post contains street language about body parts, harvested from Twitter last night with Xeni's permission. This is a story of a non-medical person getting it in gear when she finds herself in need, and what happens when she does. A famous blogger/journalist is...
Important papers released on patients and their medical records
Important update: I just learned that the full text of these articles is open access! Thanks to the Annals for giving patients access to the text - since it is, after all, about patients see the information. OpenNotes article: "Inviting Patients to Read Their Doctors'...
Two new JoPM articles tell one great participatory medicine success story
The Journal of Participatory Medicine has published a pair of complementary articles, one by a patient advocate and one by a physician, both concerning the story of a woman who worked tirelessly to obtain better health care for her two chronically ill and...
Daniel Carpenter in NY Times: Move the FDA out from under politicians
I'm no expert on the FDA but my science antennas are twitching nervously about this, so I'll post and invite discussion. In a surprising move last week, President Obama and HHS Secretary Sebelius overrules (basically, vetoed) the FDA's recommendation to make "Plan B"...
Nancy Finn: Personalized medicine and participatory medicine intersect
There's no stopping an idea whose time has come. SPM member Nancy Finn (@NFinn8421), in the process of her own odyssey as a health care thinker, had an epiphany that strongly echoes the principles of the growing P4 Medicine movement ("predictive, personalized,...
Michael Millenson: When the patient’s wish was irrelevant
We're thrilled to welcome well-known quality and safety authority Michael Millenson as the newest member of the Society for Participatory Medicine. Here is his first guest post, referring back to his popular article in our Journal. He illustrates how recently the...
Interactive timeline of EHR history
Katie Matlack at SoftwareAdvice.com has posted an interactive timeline of EHR history. Interesting to see how things unfolded long ago. Â Note, too, two long-ago pivotal moments: The late 1960s introduction of Larry Weed, MD's Problem-Oriented Medical Record,...
For some people, it’s still 1994
Here's a question which inspired me today, received via email from Christie Silbajoris, director of NC Health Info: My library is rethinking its provision of services to the public. We’ve got a history of going beyond what the average academic health sciences...
.5 x .5: Deconstructing Margolis
As often happens, a Susannah Fox post has led to lingering questions. This time I've figured out what I want to say.:-) Last week, in a side note on her World AIDS Day post, she inserted this: ... Let’s review the basic math of health services delivery in the U.S.,...
Kathy Kastner: Why I joined is not why I’ve stayed
Guest blogger Kathy Kastner shares her experience as an SPM member. Her website, Ability4Life, offers resources for participatory family caregivers. When I first heard the words "Participatory Medicine" I felt fully in synch, even without delving into its practical...
Monthly introduction for new subscribers
We're taking a page from our good friend @Berci, whose ScienceRoll blog has won numerous awards. He frequently runs an introduction post for new subscribers, to show them around the place and let them know all the things he's up to. We're stealing it: we'll run this...