e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
Society for Participatory Medicine Files Comments in Support of Proposed CLIA and HIPAA Regs Making Lab Results Available to Patients
As you may recall, in September the federales issued proposed regulations that would make all lab results subject to the basic rule that all patient records should be provided to the patient upon request. See the post on e-patients.net explaining the proposed rule on...
Kari Ulrich: Experienced from both sides of the bed
This guest post by Kari Ulrich, RN, originally appeared in a fibromuscular dysplasia e-patients' blog. The November 2011 issue of Reader's Digest reads in big, bold print, "50 Secrets Nurses Won't Tell You." Articles like this create fear and mistrust in the patient...
Libro Blanco de los e-Pacientes en Español
To read this post in English, click here. Hacía tiempo que teníamos en mente la posibilidad de llevar a cabo la traducción del Libro Blanco de los e-Pacientes al Español, ya que con más de 420 millones de hispanoparlantes en todo el planeta, nuestro idioma es ya la...
Announcing: the e-Patient White Paper, in Spanish
It's been a long time coming, but it's here! From the English "e-Patients: How they can help us heal health care," you can now click to download the Spanish e-Pacientes: cómo nos pueden ayudar a mejorar la salud. To read this post in Spanish, click here. From the...
Nancy Finn: Smartphone Health Care Apps Storm the Market
Guest blogger Nancy Finn reports on the popularity of health apps. She is the author of e-Patients Live Longer. The Pew Internet & American Life Project conducted a national telephone survey of 2,277 adults in May 2011 and found that 83% own some kind of cell phone....
A glimpse of OpenNotes findings: “Patients are overwhelmingly interested”
"Patients are overwhelmingly interested in gaining rapid access to their notes ... doctors have not experienced significant disruptions to their work." Hear hear! That's from a new commentary published Monday in Modern Healthcare about the OpenNotes project, in which...
Action in the face of uncertainty
Science seeks certainty. The problem in medicine is, the body is complex and our knowledge is incomplete. People who want certainty - physicians or patients - are kidding themselves. And if we expect docs to be perfect, it's a setup for dysfunction. Sometimes I hear...
What do Participatory Medicine and OWS have in common?
The short answer is "plenty" but the longer one will have to wait. This is a work in progress, but in the meantime, I'm surfing the net and finding great stuff to share. In particular, see this video or read the transcript of ethicist Harriet Washington being...
JoPM: Patient-oriented content on hospital websites
The Journal of Participatory Medicine has published a research paper entitled "Promoting Participatory Medicine with Social Media: New Media Applications on Hospital Websites that Enhance Health Education and e-Patients’ Voices." The study analyzed the content of 14...
Lisa Gualtieri: Must waiting be inherent to medical care?
This guest post by Lisa Gualtieri originally appeared in the author's health blog. “By the time you see the doctor, you’re either dead or you’re better,” my mother-in-law told me. She had to have multiple tests, all with long waits to get the appointments and the...
Next “doctor as e-patient”: Howard Luks, MD
We've sometimes written about doctors as e-patients. (There are a lot!) Here's the next. SPM member Howard Luks MD, orthopedist, had some symptoms. He spoke to his physician and GI doc, who gave him pills. It didn't make sense to him. So he did what a lot of us do:...
Steve Jobs’ Cancer Denial
The 60 minutes interview with Steve Jobs' biographer is an intriguing piece that gives us a few insights into Steve Jobs and his battle with pancreatic cancer. But the most disturbing part of the interview for me was watching Walter Isaacson, a former editor of TIME...