e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
Shake up the System: Sign & Share the Participatory Medicine Manifesto!
Time for change! The theme of our 2019 conference was #Time4Change. This post kicks off a major 2021 campaign for our Society: the Participatory Medicine Manifesto. At that event we took action: in a design-thinking exercise, attendees crowdsourced the ideas that have...
Trust is Complicated: Person-First Safe Living in a Pandemic Part 3
Trust in COVID19 times depends on context: circumstances, historical identity, tolerance for risk, comfort with uncertainty, attitude about individual rights and social responsibility, critical thinking & more. Introducing a trust label. Podcast episode here...
We’re Looking for an Executive Director to Join the Society
Have you heard? The Society for Participatory Medicine (SPM) is hiring an Executive Director. You can read more about the position here and how to apply. Please pass the job description along to your professional network as well as anyone you may know who may be...
Power of People. Pause and Trust. Lynne Becker
Designing clinical trials for and with people with Traumatic Brain Injury. Lynne Becker looking forward over time, not backward. Building a business. Proem You know the old story of the researcher looking for their lost keys under the streetlight when they lost them...
Marketing & Communications Rockstars Wanted!
The Society for Participatory Medicine (SPM) is looking for some rock stars to join our Marketing committee and to help change the world. If you would like to volunteer or know someone who may be interested, please take a look. We are a fun, high energy team committed...
Person-First Safe Living in a Pandemic: Part 2: Finding Guidance
How do regular people find evidence-informed guidance to help make decisions about safe living in a pandemic? Questions answered when needed in a useful manner? Part 2 in this Person-First approach. Join our journey. Proem A few weeks ago, on this podcast, I...
Leadership Transition, Part 2: Meet Mary Hennings
Hi Fellow SPM Members, As a follow up to the note from Danny Sands on Monday, I would like to provide you with an update on some of the exciting strategy work a group of board members and others undertook this summer and fall. Much has changed in the world at large...
Leadership Transition, Part 1
Leadership transitions are an essential part of the maturity of any organization. I have been board chair of Society for Participatory Medicine (SPM) for many years and now it is time to pass the torch to Mary Hennings so that I may become our first chief advocacy...
OpenNotes site upgrades its literature search, to help authors and educators find relevant papers
As regular readers know, our Society for Participatory Medicine has always been a strong advocate for the OpenNotes movement as a key enabler of patient power. As co-founder Dr. Danny Sands often says in his speeches, "How can patients participate if they can't see...
Engage! Community Organizing, Coalitions & Infrastructure
Healthcare activists need communities to affect change. Considering public-private partnership with NCQA's Digital Measurement Community with Ben Hamlin. Proem Activists seek to inform and nudge change for the better – political, social, cultural, healthcare, service...
Fostering Solidarity on the Front Lines Through Stories
Stories are powerful because they foster human connections, transparency, and innovation, ultimately leading to better experiences for those giving and receiving care. Healthcare workers' perspectives are critical to creating a shared vision of health care that better...
Person-First Safe Living in a Pandemic #1
How can laypeople find up-to-date, trustworthy answers to questions they have about living safely in an emergency, when they have them, in a useful manner? Part 1: a person-first approach for researchers & content creators to help people and their communities find...