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How to be Participatory in the Face of Adversity

From the lens of a patient who recently experienced major surgery, I now realize how difficult it is to be participatory when you are in pain and taking large doses of pain medication which dulls the senses and puts you in a place where you are not really thinking...

How Things Change

SPM member Jody Schoger’s post “Cancer: Part Two” at her blog Women with Cancer landed with a big thud on April 26. Schoger was recently diagnosed with metastatic breast cancer. She’s a co-founder of #bcsm (breast cancer social media), one of the highest...

What Do ‘Engaged’ Patients Do?

Member Eve Harris wrote another great blog post for KQED – Public Media for Northern California. It is about one woman’s personal decision on how to treat her breast cancer. A short extract below: Basila is strong evidence that individuals react...

Social Media Breakfast – Healthcare in the Social Media Era

If you are in Boston this Friday, you can attend the Social Media Breakfast. The SPM member Alicia Staley will present the progress of the  #bcsm (breast cancer social media) community. Other speakers will be there as well and it only costs $8.00. For more details and...

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