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Open Internet vs. Closed Doctor-Directed Systems

This morning’s NPR story, “Patients Turn to the Internet for Health Information,” featured data from my e-patients report, but also some research that has been conducted at the Center for Health Enhancement Systems Studies (CHESS) at the University...

E-patients With Chronic Conditions

Sometimes my research becomes a little too much for me to bear alone. Like when I find that people living with chronic disease and disability are among the least likely to have access to the internet, but who, once online, are among the most avid e-patients. Or when I...

The Business of Survival

The Boston Globe today has a great article that, to me anyway, really illustrates the amazing resiliency and imagination of the human spirit when faced with the unthinkable. It describes Avi Kremer’s story, a man diagnosed with ALS who decided to fight back,...

Three Simple Rules

Don Kemper, CEO of Healthwise, calls on us to continue the debate that he & Tom began many years ago with a post about his “Three Simple Rules”: The Self-Care Rule: Help people do as much for themselves as they possibly can. The Guidelines Rule: Help...

Patient-Driven Content at MedShelf.org

Derek Hansen, a fellow e-health researcher, wrote to me about his latest project and it fit so perfectly that I asked him to write it up for us — thanks, Derek! ——————- Online support groups have long been recognized as an...

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