Note: This is two posts in one — scroll down to read Regina Holliday’s point of view.
From Susannah Fox:
For me, Twitter is a free-wheeling space where people dance with ideas. Anyone is welcome to jump into the spotlight and take a twirl. That’s how I see hashtags – spotlights on circles of people, talking about certain ideas. Create a hashtag and you call the tune. Add a hashtag to your tweet and you join the circle.
Over the last few days #whatifhc (which stands for “What if health care…?”) became a flashmob of dream-sharing, a pop-up forum for health care ideas, no matter how idealistic, grand, or granular.
It started when I tweeted a quote from Peter Margolis of the C3N Project:
“What if it was as easy to find out how to…find a medicine that’s right for you as it is to order exactly the book you want?” #c3n
His colleague Michael Seid tweeted back:
“new hashtag? #whatifhc what if everyone had the means & motivation to be part of the solution?”
I tweeted a few examples and the dancers began to whirl:
@produceconsume: #Whatifhc was focused on health, not just on care?
@GoalsGamified: What if more Americans accepted that shopping at farmers market costs less than food courts in the long term. #preventionisthrift #whatifhc
@cloudspark: what if we rewarded docs for choosing primary/family/internal medicine instead of specialties? #whatifhc
@klimaz: #whatifhc people actually took the advice of public health: stop smoking, get outside, eat fresh food, reconnect with friends…
@swertheimer: What if hospital bills showed actual costs? #whatifhc
@meganhatch: What if looking at my medical information and records were as easy as checking my email? #whatifhc
But a couple of people looked at #whatifhc and saw #wtfhc (“What the f… health care?”) in the jumble of letters. They heard a darker drumbeat, from a nightmare, not a dream.
@ReginaHolliday: What if your husband was dying and they would not let you see a medical record w/out paying 73 cents per page? #wtfhc
And the dance continued, spinning out in two directions now.
From Regina Holliday:
Looking back on the memory of
The dance we shared beneath the stars above
For a moment all the world was right
How could I have known you’d ever say goodbye
And now I’m glad I didn’t know
The way it all would end the way it all would go
Our lives are better left to chance I could have missed the pain
But I’d of had to miss the dance.
-Garth Brooks, The Dance
Susannah is right. Twitter is a dance. We often stay wallflowers surrounding the space until a new song is played. A hashtag catches our eye allowing us the chance to meet new partners or reunite with old ones. When I saw #Whatifhc, my dyslexic mind and injured soul saw #Wtfhc. I blushed to use this tag, as I am not one to curse. It made me uncomfortable. What would people think?
I suppose a lot of things in health care are uncomfortable.
It is uncomfortable to lie on bedsores, whist in constant pain. It is uncomfortable to have a catheter placed. It is uncomfortable to be woken in the middle of the night because staff members think that is the best time to check your vitals.
It is uncomfortable to gasp for breath while fluid to fills your lungs as you lay dying.
I might have lost a few followers when I tweeted with this tag. I seemed the angry patient. I made them uncomfortable.
I paint about this discomfort frequently. When you look upon The Walking Gallery you will see a great deal of #Whatifhc jackets. Susannah’s jacket is mostly a #Whatifhc interpretation. They are beautiful and hopeful, but you will see #Wtfhc jackets too.
Perhaps when I post a jacket, I shall use these tags. Labeling each jacket with darkness and light.
What if a day came when I only had to use just one tag? #whatifhc
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What’s your health care dream? What’s your nightmare? Please add it in the comments below or join the dance on Twitter.