e-Patient Dave, Author at SPM Blog

“Check the box for e-Patient”

by e-Patient Dave | May 24, 2012

From SPM member Keith Boone, author of the e-Patient Rap, whose first verse I did in my TEDx Maastricht talk: My daughter did something interesting a couple of weeks ago when we went to her pediatrician’s office. We asked for her records, and she told the clerk...

What Do Aggregators Know About Me and Why It’s Important

by e-Patient Dave | May 20, 2012

Guest post from SPM member Adrian Gropper, MD of HealthURL.com. Information is the foundation for patient engagement. Nothing about me without me. Although personal medical information starts out with your various institutions and doctors, it doesn’t just stay with...

KQED blog on Hugo Campos and his quest to access his data

by e-Patient Dave | May 19, 2012

KQED blogger and SPM member Eve Harris has written a great brief piece on Hugo’s desire to access the data from his implanted defibrillator, beginning: Hugo Campos was apologetic about postponing a scheduled interview with me two weeks ago. In a midday email he...

Storify feed from Health FOO this weekend

by e-Patient Dave | May 19, 2012

Here’s a quick starter note – I hope to say more later. Health FOO is a by-invitation “unconference” from O’Reilly Media and Robert Wood Johnson Foundation this weekend at Microsoft’s development center in Cambridge, MA. SPM...

Hugo Campos has major arrhythmia, goes to ER, wants his data even more now

by e-Patient Dave | May 10, 2012

SPM member Hugo Campos has had much coverage here and in the media (NPR, SF Chronicle, San Jose Mercury-News) for his desire to see the raw data coming out of his implanted defibrillator. The vendor, Medtronic, feels that its responsibility is to give Hugo’s...