by e-Patient Dave | Jan 1, 2012
Follow us on Twitter (@S4PM), Facebook, and LinkedIn!  Here’s how to become a member, individual or corporate. Our publications: Our blog is e-patients.net. Subscribe via RSS or email, tweets etc. Our open-access journal is the Journal of Participatory...
by e-Patient Dave | Dec 31, 2011
It’s fitting that our last post of the year should be about a patient community … winning an award! ACOR’s “KIDNEY-ONC” kidney cancer patient community was recently honored with the “Maily” Listserv Choice award in this, the...
by e-Patient Dave | Dec 22, 2011
To understand a headline – especially a year-end “Top N” list – you need to look under the hood and find their criteria. Yesterday the New York Times Well blog posted The Most Popular Health Topics of 2011. I looked, eagerly, to find the rise...
by e-Patient Dave | Dec 22, 2011
Update 6:33pm ET: the Storify feed wasn’t working. Should be fixed now. What a rocket ride it’s been for Xeni. Tuesday morning we reported on the BoingBoing co-editor’s unexpected breast cancer diagnosis 12/9, and her odyssey reading her scan data....
by e-Patient Dave | Dec 22, 2011
One of the highlights of 2011 for me was the introduction in May (see our post) of the Engagement Behavior Framework by SPM member (and JoPM founding co-editor) Jesse Gruman. She and her team methodically identified 43 behaviors to be done by an engaged patient or...
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