by Ileana Balcu | Oct 9, 2013
Guest blogger Kathy Kastner gives us an overview of the Patients 2.0 session at the Health 2.0 conference. Kathy Kastner is Blogger and Curator for bestendings.com and ability4life.com I was so pleased to have SPM president, Sarah Krug, invite me to present at...
by Ileana Balcu | Sep 24, 2013
The Society for Participatory Medicine is hiring and looking for an experienced Director of Development. Are you interested or do you know someone in your network who might be? Here’s the information & instructions on how to apply:...
by Ileana Balcu | Sep 13, 2013
Guest blogger Natasha Gajewski participated in the Flip the Clinic meeting at the Robert Wood Johnson Foundation. Below are her observations about the meeting and a thought you might consider. Natasha is an e-Patient and the developer of Symple, a symptom journal for...
by Ileana Balcu | Sep 11, 2013
SPM is launching a tweetchat series this Saturday, Sept. 14 at 3pm Eastern, 7pm GMT (use The World Clock [link: http://www.timeanddate.com/worldclock/converter.html] to find your time zone). The chat will be led by Casey Quinlan, @MightyCasey; Ileana Balcu,...
by Ileana Balcu | Aug 16, 2013
Guest blogger Kathy Kastner gives us an overview of the health literacy resources on the Internet. It is an important topic – how can patients be engaged and participatory if they don’t understand what they are told? Kathy Kastner is Blogger and Curator...
by Ileana Balcu | Aug 13, 2013
Guest blogger Peggy Zuckerman tells us a story about a young competent doctor and how transparency and openness is key to giving better care. Peggy Zuckerman never intended to be a patient advocate, not even a patient! But after her diagnosis with a “tiny,...
by Ileana Balcu | Jul 1, 2013
Guest blogger Peter Elias, MD describes his journey on opening up his office notes to patients. Peter is a family physician in active primary care practice since 1977, co-founder of a group practice now owned by a hospital-based multi specialty group, with a...
by Ileana Balcu | Mar 28, 2013
On Monday, March 25, 2013, ONC, in collaboration with Cornell University, launched a new web platform for obtaining public input to inform health IT strategic planning. Check out the new PlanningRoom site, and provide your thoughts. ONCs initial focus is on consumer...
by Ileana Balcu | Mar 20, 2013
Please join us for a tweetchat this evening – Wednesday March 20 at 8 PM ET/ 5PM PT. We’ll talk about: What’s new with Gimme my DAM Data #gmdd ? – Wall Street Journal picked the story at SXSW conference...
by Ileana Balcu | Feb 15, 2013
The Health Affairs February 2013 issue is titled “New Era of Patient Engagement” and the content matches the title. Nick Dawson describes the day in his blog post Health Affairs is the new shirtless dancing guy Here’s a short extract from the blog...
by Ileana Balcu | Jan 25, 2013
Thanks to Carla Berg for sharing this: Eric Topol was on Rock Center tonight. He talked about the patient empowerment and give us our data themes he brings up towards the end, he did everything but mention #gmdd and patients in the drivers seat explicitly. The key to...
by Ileana Balcu | Jan 25, 2013
The HIMSS blog features e-Patient Dave, the 5 Es of e-Patients and how social media can help. http://blog.himss.org/2013/01/25/part-1-value-of-social-media-in-healthcare-is-already-outlined-just-not-realized/ For whatever reason – whether it’s budget, time, buy-in or...
by Ileana Balcu | Jan 24, 2013
The latest buzzword in the Healthcare IT (HIT) world is “patient-centric”. It seems that everyone’s device/software/solution is designed to be patient-centric. On the Society for Participatory Medicine’s internal listserv we discussed what does it take for an HIT...
by Ileana Balcu | Nov 29, 2012
Our members Hugo Campos and Amanda Hubbard featured in this great piece in the Wall Street Journal Heart Gadgets Test Privacy-Law Limits http://online.wsj.com/article/SB10001424052970203937004578078820874744076.html?mod=WSJ_hpp_LEFTTopStories Very extensive and well...
by Ileana Balcu | Oct 22, 2012
Member Alicia Staley on the HIT Community (MA HI Community) blog with a great recount of the first EHR exchange in Massachusetts – it happened last week: https://www.thehitcommunity.org/2012/10/16596/
by Ileana Balcu | Oct 17, 2012
Hash-Day on Tweet Chat at #s4pm on Weds, 10/17 In honor of Social Media Week (at Mayo in MN; #mayoragan) and with a nod to @hjluks (of the @Symplur hashtag project) our #s4pm chat theme this week will be about #hcsm and the topic is: “How Do You Like To...
by Ileana Balcu | Aug 27, 2012
On Wed 8/29/20012 at 8 PM ET / 5 PM PT please join us for a Tweetchat hosted by SPM member Janice McCallum @janicemccallum about Big Data in Healthcare. One good way to participate is to use the website http://tweetchat.com/room/s4pm Go to the site at the right time,...
by Ileana Balcu | Aug 2, 2012
Another blog post from Eve Harris on KQED describing the use of medical assistant health coaches to help patients make and keep their health care goals. http://blogs.kqed.org/stateofhealth/2012/07/26/primary-care-efforts-to-involve-patients-in-decision-making/ Go Eve!...
by Ileana Balcu | Jul 25, 2012
From Hive Strategies, an interesting blog post talking about the healthcare”intimate public” – the communities that patients with a certain condition form with each other. An important part of being an e-patient is being engaged with others like...
by Ileana Balcu | Jul 24, 2012
Member Eve Harris wrote another great blog post for KQED – Public Media for Northern California. It is about one woman’s personal decision on how to treat her breast cancer. A short extract below: Basila is strong evidence that individuals react...
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