by Susannah Fox | Jul 16, 2009
The National Institutes of Health hosted a Wikipedia Academy today to train scientists, communications staff, and other NIH staffers in how to contribute to what has become a top source for health information in the U.S. (For more details, please see the NIH press...
by Susannah Fox | Jul 14, 2009
U.S. News & World Report’s Best Hospitals guide features 3 articles of particular interest to e-patients: Getting Medical Advice on the Web from Other Patients Would You Share Your Health Information Online? Great Medicine Needs Committed Patients...
by Susannah Fox | Jul 8, 2009
The poli-tech tribe gathered in New York last week for the Personal Democracy Forum and, as Craig Newmark put it, welcomed “our new nerd overlords.” Esther Dyson, Jamie Heywood, Rep. Jerry Nadler (D-NY), and I were asked to take on a breakout panel...
by Susannah Fox | Jun 10, 2009
The Pew Internet/California HealthCare Foundation report, The Social Life of Health Information, is packed with new findings from a survey of 2,253 adults, including 502 cell-phone interviews, conducted in either English or Spanish. We spent a bundle of money on...
by Susannah Fox | May 5, 2009
Update on 12/3/14: Nature re-ignited the access debate when they announced that they will make all their articles “free to view” (but if you read the fine print: it makes the “dark social” practice of #icanhazpdf and other access work-arounds...
by Susannah Fox | May 2, 2009
Deborah Bell is actively involved in cancer advocacy and manages several online communities for cancer patients, their families, and their friends, having been an ACOR listowner for 11 years, and a listmember for 13. She contributed the following essay: I know a...
by Susannah Fox | Apr 23, 2009
Original title: Health 2.0 meets Ix: Susannah Fox’s presentation Here are my prepared remarks for the “Navigating the New Health Care Delivery System” segment at the Health 2.0 meets Ix conference (with the lines I added to respond to other themes...
by Susannah Fox | Apr 17, 2009
A sneak preview of my remarks at the “Health 2.0 meets Information Therapy” conference appears on the IxCenterBlog: Participatory Democracy, Participatory Medicine. A good discussion of the issues has already begun there and on The Health Care Blog....
by Susannah Fox | Mar 30, 2009
Fard Johnmar interviewed me about internet adoption, the use of social technologies among minority groups, and my hope that e-patients’ “passion, knowledge, and ingenuity is brought forward no matter what else is planned for health care reform.”...
by Susannah Fox | Feb 28, 2009
Today is Rare Disease Day 2009. Join us in recognizing the reality of rare disorders and celebrating the beauty in the eyes of children living with rare disease and those who have lost their lives.
by Susannah Fox | Oct 21, 2008
The Center for Studying Health System Change has released another information-packed report, How Engaged Are Consumers in Their Health and Health Care, and Why Does It Matter. The researchers created a “Patient Activation Measure” and apparently 41% of...
by Susannah Fox | Mar 12, 2008
Bowing to popular demand (OK, one person) I uploaded a PDF of the 2001 press release from the American Medical Association which suggested that Americans make a New Year’s resolution to “trust your physician, not a chat room” since the information found online puts...
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