by Eric Bersh | Mar 6, 2023
Editor’s note: In her book, Rare Like Us: From Losing My Dad to Finding Myself in a Family Plagued By Genetic Disease, Taylor Kane shares the invaluable lessons she learned growing up in a family plagued by a genetic disease so rare that most doctors have never seen...
by John Novack | Dec 6, 2022
Editor’s note: In his new book, Open Heart, Warrior Spirit: A Man’s Guide to Living With Cancer, patient activist Trevor Maxwell explains why men go into their “man caves” when facing a cancer diagnosis; provides tips for avoiding that dangerous isolation;...
by Eric Bersh | Nov 15, 2022
Editor’s note: In his new book, The Long Haul – Solving the Puzzle of the Pandemic’s Long Haulers and How They Are Changing Healthcare Forever, journalist and patient Ryan Prior depicts the courage of patients with Long COVID who were the first to name,...
Exciting 15th Anniversary Project and Opportunity for Member EngagementAugust 7, 2024
Leveraging Personalized Technology to Motivate Behavior ChangeMay 6, 2024
Technology, Health Equity, and Participatory Medicine in the Care Management of Sickle Cell PatientsApril 26, 2024
Driving Transformation: Change Management Strategies for Integrating Participatory Medicine in HealthcareApril 6, 2024
The Challenge for Medicare Part D Patients: Inability to Utilize Pharmaceutical Programs to Reduce Medication CostsMarch 29, 2024
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