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Caregiving Archives - SPM Blog
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Family Caregivers and Care Partners: An Essential, but Underserved Part of Participatory Medicine

Family Caregivers and Care Partners: An Essential, but Underserved Part of Participatory Medicine


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Informal, unpaid family caregivers and care partners are increasingly the backbone of participatory medicine. My father was a physician, but when he was seriously ill, it was really on my mom and me to advocate for him, understand the constellation of conditions,...
The Power of Storytelling

The Power of Storytelling


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In the fall of 2020, in the depths of the pandemic, I attended the Philadelphia Inquirer Telling Your Health Story Conference from the safety of my home. I had volunteered to do the Story Slam at the end of the conference and planned on presenting a piece about caring...
It’s Time to Acknowledge the Invisible Caregivers Among Us

It’s Time to Acknowledge the Invisible Caregivers Among Us


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I received an uncharacteristically anxious text from my friend Aileen: “I am having an emergency with my Mom. Please call ASAP.” When I last talked to Aileen, her mother’s dementia had been worsening slowly. A little more confusion, a stovetop left burning after...

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