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Government involvement Archives - SPM Blog
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Uncle Sam Wants You! FDA’s new Digital Health Advisory Committee needs an e-patient voice!

Uncle Sam Wants You! FDA’s new Digital Health Advisory Committee needs an e-patient voice!


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As the World War I recruiting posters put it, “Uncle Sam Wants You!” In this case, though, it’s not the U.S. Army, but the U.S. Food and Drug Administration. The FDA, whose regulations touch 25 cents of every dollar spent by U.S. consumers, is launching a Digital...
Patients and Industry: Starting Our New Life Together in 2023

Patients and Industry: Starting Our New Life Together in 2023


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Flash back to my article for the Society for Participatory Medicine last year: Let’s Save the Date and Make Patient Engagement Official in 2022. I’m here to deliver some great news: we tied the knot! By the power vested in clinical research, the FDA now pronounces us...
Participatory Medicine is Where You Find It

Participatory Medicine is Where You Find It


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Collaborations across healthcare can save lives – especially when working with patient advocates. For a person like me, who is impacted by a rare, neurological, and incurable disease, it’s my mission to ensure that patients’ perspectives are represented  early...

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