by e-Patient Dave | Jun 19, 2012
Susannah Fox’s post about this two years ago pretty much went over my head: I didn’t get how important it was. But at this month’s White House conference on patient-generated data, I met Nikolai Kirienko, who was the central specimen in her post. The...
by Ileana Balcu | May 18, 2012
Neil Versel, a HIT journalist, relates a very touching story of his father’s care at two different hospitals: one was uncoordinated and prone to errors and near misses, another one was quite a good experience. Unfortunately Neil’s father had a rare poorly...
by e-Patient Dave | Mar 21, 2012
Update 3/23: here’s the transcript of the event. Remember December’s post about the #firstMRI idea, to help poor unsuspecting patients prepare for the “monkeys banging on garbage cans” experience? It’s a project now! Join us for...
by e-Patient Dave | Mar 1, 2012
SPM member Regina Holliday is known for her “Walking Gallery” of painted jackets, each telling one person’s healthcare story, which she relates in an accompanying post on her blog. On Tuesday she became the latest e-patient to testify at a meeting of...
by Kathleen O'Malley | Feb 28, 2012
The Journal of Participatory Medicine has published a narrative by Kelly Young entitled “Present, Patient, and Accounted for: How and Why Patients Are Present at Scientific Meetings of the American College of Rheumatology.” Young describes how the...
by e-Patient Dave | Feb 12, 2012
It’s funny how things turn out sometimes. Lately I’ve written a lot here about e-patients taking an active role at a new level in healthcare, not just engaging in their care, but actually defining what it should be. Well, wouldn’t you know it, life...
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