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Cleveland Clinic To Give Patients Full Access to Data

Healthcare IT News posted a detailed story about how the Cleveland Clinic plans to roll out its new MyChart EMR to give patients complete access to their health records by the end of 2013. According to the article, the Cleveland Clinic believes this move is “the...

Erin Moore: Are Patients a Distraction? I think not…

This guest post is from SPM member Erin Moore @ekeeleymoore and is reproduced from her blog, 66 Roses, which is dedicated to finding a cure for cystic fibrosis. There was a healthcare conference last fall that I desperately wanted to go to. The conference was for...

Nancy Finn: How Do Patients Make Good Choices?

Guest blogger Nancy B. Finn is a writer and thought leader on the impact of digital communication on organizational behavior, health care, and patient care. When you go to the supermarket, it is fairly easy to make good choices about which cereal or fruit to purchase....

Benoit Bisson: Being a patient knows no boundaries

Guest blogger Benoit Bisson, a kidney cancer patient, journalist and SPM member in MontrĂ©al, offers an international perspective on the participatory medicine movement. He’s @Benoit_Bisson on Twitter; his blog is BenoitBisson.com. Guest post submissions are...

Idelle Davidson: “ASCO, Where Have You Been?”

This guest post by Idelle Davidson originally appeared in the Huffington Post as “ASCO, Where Have You Been? The organization that sets standards for cancer care does not include cognitive issues in their patient consent document.” Last month, I was in Arlington, Va....

Mayo Clinic Scholarship Contest for e-Patients

This post originally appeared at http://socialmedia.mayoclinic.org/2012/06/20/2012-patient-caregiver-scholarship-contest-for-social-media-summit/. The Mayo Clinic Center for Social Media is offering an opportunity for patient advocates to attend its Social Media...

Is “gimme my damn data” damning to patients?

E-Patient Hugo Campos, whose quest to obtain his medical data has been followed by the media (including this blog) over the past several months, appears in a new interview in SFGate.com. He discusses a common fear of e-patients — that he may be perceived by...

Making Sense of “Patient-Centered Care”

The Journal of Participatory Medicine received a nice recommendation from Paul Levy, former CEO of Beth Israel Deaconess Medical Center, in his blogpost on where to find reliable information about patient-centered medicine. Levy also recommends a new non-profit site...

Gangadhar Sulkunte: TEDMED 2012 Highlights

For those who didn’t make it to TEDMED 2012, here’s a brief overview of sessions of interest to e-patients, from SPM member Gangadhar Sulkunte. This originally appeared on his blog. Also noteworthy was TEDMED’s acceptance of “The Role of the...

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