by Kathleen O'Malley | Jun 10, 2013
Healthcare IT News posted a detailed story about how the Cleveland Clinic plans to roll out its new MyChart EMR to give patients complete access to their health records by the end of 2013. According to the article, the Cleveland Clinic believes this move is “the...
by Kathleen O'Malley | Jun 6, 2013
This guest post is from SPM member Erin Moore @ekeeleymoore and is reproduced from her blog, 66 Roses, which is dedicated to finding a cure for cystic fibrosis. There was a healthcare conference last fall that I desperately wanted to go to. The conference was for...
by Kathleen O'Malley | Jun 5, 2013
This guest post was written by Lisanne St. Onge Klute and originally appeared on The Story of iPatchman, a blog for e-patients with brain tumors. It is a great example of the power of social media for helping e-patients find the best treatment. Thanks to Akiva...
by Kathleen O'Malley | Apr 5, 2013
This guest post by Michael L. Millenson originally appeared on The Health Care Blog. Michael is president of Health Quality Advisors LLC in Highland Park, IL; the Mervin Shalowitz, MD Visiting Scholar at the Kellogg School of Management; and a board member of the...
by Kathleen O'Malley | Oct 25, 2012
Today’s guest blogger, author and SPM Secretary Nancy Finn, originally posted this essay on her personal blog. Care coordination requires that the right information reaches the right people within an optimal time frame, so that a patient’s full information...
by Kathleen O'Malley | Sep 27, 2012
This blogpost by Chuck Alston and Patrick McCabe originally appeared on the Health Affairs blog. Many thanks to SPM member Michael Millenson for alerting e-Patients.net to this piece. It has been 22 years since David M. Eddy — the heart surgeon turned...
by Kathleen O'Malley | Sep 26, 2012
Guest blogger Marya Zilberberg is the author of Between the Lines: Finding the Truth in Medical Literature. She originally posted this piece on her blog Healthcare, etc. I have been looking up information on endometriosis for a friend of mine, and came upon this from...
by Kathleen O'Malley | Sep 18, 2012
Guest blogger Neel Shah, MD is the Executive Director of Costs of Care and a chief resident in obstetrics and gynecology based at Harvard Medical School. As a presidential election looms and the American economy struggles to recover, the spiraling costs of healthcare...
by Kathleen O'Malley | Sep 14, 2012
Guest blogger Susan R. Mende, BSN, is a senior program officer at the Robert Wood Johnson Foundation, the nation’s largest philanthropy devoted exclusively to health and health care. She is engaged in the Foundation’s efforts to help consumers take an active role in...
by Kathleen O'Malley | Sep 13, 2012
Guest blogger Nancy B. Finn is a writer and thought leader on the impact of digital communication on organizational behavior, health care, and patient care. When you go to the supermarket, it is fairly easy to make good choices about which cereal or fruit to purchase....
by Kathleen O'Malley | Aug 14, 2012
This listserv exchange between new Society for Participatory Medicine members is a nice example of how “newbie” e-patients often come to us with decades of experience and well-honed (and well-blogged) philosophies of what healthcare should be and can be....
by Kathleen O'Malley | Aug 1, 2012
Guest blogger Benoit Bisson, a kidney cancer patient, journalist and SPM member in Montréal, offers an international perspective on the participatory medicine movement. He’s @Benoit_Bisson on Twitter; his blog is BenoitBisson.com. Guest post submissions are...
by Kathleen O'Malley | Jul 5, 2012
This guest post by Idelle Davidson originally appeared in the Huffington Post as “ASCO, Where Have You Been? The organization that sets standards for cancer care does not include cognitive issues in their patient consent document.” Last month, I was in Arlington, Va....
by Kathleen O'Malley | Jun 27, 2012
This post originally appeared at http://socialmedia.mayoclinic.org/2012/06/20/2012-patient-caregiver-scholarship-contest-for-social-media-summit/. The Mayo Clinic Center for Social Media is offering an opportunity for patient advocates to attend its Social Media...
by Kathleen O'Malley | Jun 1, 2012
SPM member Nancy B. Finn shares some recent research findings that confirm what many of us suspected about the value patients get out of health care in the U.S. When we go to the supermarket or the store to make a purchase, most of us are concerned about getting what...
by Kathleen O'Malley | May 7, 2012
E-Patient Hugo Campos, whose quest to obtain his medical data has been followed by the media (including this blog) over the past several months, appears in a new interview in SFGate.com. He discusses a common fear of e-patients — that he may be perceived by...
by Kathleen O'Malley | Apr 30, 2012
The Journal of Participatory Medicine received a nice recommendation from Paul Levy, former CEO of Beth Israel Deaconess Medical Center, in his blogpost on where to find reliable information about patient-centered medicine. Levy also recommends a new non-profit site...
by Kathleen O'Malley | Apr 26, 2012
SPM member Ken Farbstein sent us this invitation to help persuade the Office of the National Coordinator for Health Information Technology to include printed summaries of doctor visits in the ONC’s definition of meaningful use. After our pets go to the...
by Kathleen O'Malley | Apr 24, 2012
SPM member and Bay Area writer Eve Harris looks at information technology’s role in promoting participatory medicine on KQED’s State of Health blog. Harris discusses tools familiar to most e-patients, but what’s really noteworthy here is the evidence...
by Kathleen O'Malley | Apr 24, 2012
For those who didn’t make it to TEDMED 2012, here’s a brief overview of sessions of interest to e-patients, from SPM member Gangadhar Sulkunte. This originally appeared on his blog. Also noteworthy was TEDMED’s acceptance of “The Role of the...
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