e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
“What I’ve Learned from e-Patients”: Doc Tom and Dan Hoch, 2005
Thanks to the extraordinary Dutch e-patient / expert patient Lodewijk Bos (Twitter), president of ICMCC, I discovered this classic that I didn't know existed. Our founder "Doc Tom" Ferguson died 8 months later so I never knew him, but this piece makes clear that the...
Society’s ICSI keynote makes front page of Star-Tribune
The front page of Friday's Minneapolis Star Tribune has coverage of the keynote address I was privileged to deliver on May 5 at the 13th Annual Colloquium of ICSI (Institute for Clinical Systems Improvement) and IHI (Institute for Healthcare Improvement). The article...
Participant-Entrepreneurs: Innovating Toward Better Health
Nikolai Kirienko, Crohnology.MD Project Director, is setting a new standard for transparency in research and innovation as he blogs about his work with Project HealthDesign: On days where I could have benefited from the feedback of [Observations of Daily Living] the...
Frequently Asked (But Unanswered) Questions About E-patients
As I've written before, I love questions. It's an honor to be handed someone's nascent idea and to help them shape it (which is what I think a question really is). But this time I'm asking for YOUR input. These excellent questions were sent to me by Liav Hertsman and...
Patient-centered care: coordination and putting the compliance shoe on the clinician’s foot
The new definition of participatory medicine at the Society's website notes that patients "shift from being mere passengers to responsible drivers of their health, and ... providers encourage and value them as full partners." As with any collaboration, this must...
“Gimme my damn data!” The stage is being set to enable patient-driven disruptive innovation.
This is an essay I (mostly) wrote April 28 on Vince Kuraitis's e-Care Management Blog, part of his series with David Kibbe MD about the Federal EMR incentives, titled "Is HITECH Working?" The series is, in my opinion, the most useful update I've seen on this complex...
The Power of Data and the Power of One
I am struck, once again, by the power of data and the power of one. Carlos Rizo, Chief Imagineer of the Health Strategy Innovation Cell, posted this very intriguing tweet on May 2: The power of open data: To find problems in complicated environments, and possibly even...
Health Geek Radio: Adam Bosworth’s Straight Talk Express
Adam Bosworth of Keas delivered quite a lecture yesterday at the Alliance for Healthcare Foundation. He talks about how Americans don't really like data (but they need it), why "frugal innovation" is the best path for start-ups, how e-Patient Dave shook up the EHR...
The Decision Tree: How Better Health Can Scale
"The internet was created to connect people and groups. The first step is to share stories. The next step is to share quantitative observations." "Health care has been locked up in regulatory amber. HIPAA was passed in 1996, almost perfectly timed to cut off health...
“The stage is being set for patient-driven disruption”
The e-Caremanagement blog has released my post that we mentioned last week: “Gimme my damn data!” The stage is being set to enable patient-driven disruptive innovation. It's part 5 of their excellent series (really, excellent) "Is HITECH working?" As I said then, if...
Joe Kvedar’s “cHealth blog” (Connected Health)
We're long overdue in welcoming Joe Kvedar MD of Partners Healthcare to the blogosphere. From his About page: "The term “connected health” reflects the range of opportunities for technology-enabled care programs and the potential for new strategies in healthcare...
Dennis Quaid’s “Chasing Zero”
Actor Dennis Quaid has produced an outstanding, informative, empowering and motivating CME* program, "Chasing Zero: Winning the War on Healthcare Harm." It's on the Discovery Channel. Part 1 is here. This is the best-produced material I've seen to change how so much...
