e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
The HealthCare Pyramid – Views from the Apex and the Base
We've talked in the past about "d-patients" - doctors who become e-patients themselves. Our own founder Tom Ferguson MD was one. "D-patients" are a special case that proves, once and for all, that being an e-patient has nothing to do with rejecting the medical...
Tell HHS: What’s the role of patient generated data in Meaningful Use?
Next Tuesday Regina Holliday and I are among those testifying to the Health IT Policy Committee's workgroup on Meaningful Use. Please help me decide what to submit for my testimony. My session is Panel 2: Incorporating Patient-Generated Data in Meaningful Use of...
Health Data is Useful… if it Informs Conversations
Dr. Roni Zeiger, MD is currently Chief Health Strategist at Google where he has helped create and lead Google Health. He continues to see patients on occasional evenings and weekends at a local urgent care center. Roni earned his MD at Stanford and completed his...
What my mom takes to the doctor
I was talking to Mom (age 80) the other night, and she mentioned a document she updates regularly. She prints a fresh copy to take to every doctor visit, so they'll always have it up to date and won't have to go digging. We've never discussed topics like "the...
A Patient-Centric Definition of Participatory Medicine
Participatory Medicine is a movement in which networked patients shift from being mere passengers to responsible drivers of their health, and in which providers encourage and value them as full partners. This new definition devised by the board of the Society of...
Video message to medical students learning Medicine 2.0
Last week we posted a request from Dr. Bertalan Meskó for video messages from e-patients to his "Medicine 2.0" course. Here's my submission. (This is my first "vlog" (video blog) so the quality's not great - like everything "e," it'll improve with experience.) He'll...
Healthcare’s Privacy Problem (Hint: It’s Not What You Think It Is )
Lygeia Riccardi's post today on The Health Care Blog begins: I recently applied for life insurance. The broker, whom I’ve never met, asked about my health history. “So you’ve just had a baby,” he began. I asked him how he knew. “You’re on Twitter." Read her whole...
Chronic Disease in Data and Narrative
For the past 5 months I have been immersed in data and narrative about chronic disease. The result, "Chronic Disease and the Internet," is a report sponsored by the Pew Internet Project and the California HealthCare Foundation. We find that living with a heart...
Librarians and ePatients as Partners
I am thrilled to bring another guest post, this time from Luke Rosenberger, a medical librarian who has forcefully embraced social media & participatory medicine, as you'll see. Libraries & librarians have always held a special place in helping other gain...
NPSF’s magnificent Universal Patient Compact
Updated 3/12/2014 with new links at bottom. One of my personal pleasures in the first year of the Society for Participatory Medicine has been discovering people in other parts of the "patient culture" who've been doing wonderful, empowering, participatory things for...
Why is participatory medicine such a tough sell?
Kevin A. Clauson, Pharm.D. is an associate professor at the College of Pharmacy and adjunct associate professor at the College of Medicine – Biomedical Informatics Program at Nova Southeastern University in Fort Lauderdale, FL. He teaches a course on Consumer Health...
e-Patients, send video messages to @Berci’s med students
If you haven't found him yet, Bertalan Meskó is one of the best new-generation doctors making the most of social media. While he was still a med student his ScienceRoll blog won Blogger's Choice in 2007, and last month it won Medgadget's prestigious Best Medical...
