e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
Chronic Disease in Data and Narrative
For the past 5 months I have been immersed in data and narrative about chronic disease. The result, "Chronic Disease and the Internet," is a report sponsored by the Pew Internet Project and the California HealthCare Foundation. We find that living with a heart...
Librarians and ePatients as Partners
I am thrilled to bring another guest post, this time from Luke Rosenberger, a medical librarian who has forcefully embraced social media & participatory medicine, as you'll see. Libraries & librarians have always held a special place in helping other gain...
NPSF’s magnificent Universal Patient Compact
Updated 3/12/2014 with new links at bottom. One of my personal pleasures in the first year of the Society for Participatory Medicine has been discovering people in other parts of the "patient culture" who've been doing wonderful, empowering, participatory things for...
Why is participatory medicine such a tough sell?
Kevin A. Clauson, Pharm.D. is an associate professor at the College of Pharmacy and adjunct associate professor at the College of Medicine – Biomedical Informatics Program at Nova Southeastern University in Fort Lauderdale, FL. He teaches a course on Consumer Health...
e-Patients, send video messages to @Berci’s med students
If you haven't found him yet, Bertalan Meskó is one of the best new-generation doctors making the most of social media. While he was still a med student his ScienceRoll blog won Blogger's Choice in 2007, and last month it won Medgadget's prestigious Best Medical...
EHR Etiquette and the Importance of Eye Contact in Clinician-Patient Communication
Another guest post from Lisa Gualtieri, PhD, ScM, following her much-commented earlier post. Lisa is Adjunct Clinical Professor in the Health Communication Program at Tufts University School of Medicine. Lisa teaches Online Consumer Health and Web Strategies for...
What would a checklist for patients look like?
This springs up from a Twitter discussion this morning. It's Atul Gawande's fault, for his book "Checklists." :-) Forward-thinking clinicians are doing it; participatory patients should to. Let's get to work. Checklists in hospitals can dramatically reduce...
Second wave of comments on Health IT safety issues
Last month I posted the testimony I submitted to the Adoption/Certification Workgroup of the Health IT Policy Committee. (I urge interested parties to review the links to other resources in that post.) Today Paul Egerman, chair of that team, circulated a preliminary...
Patient Stories on Health Web Sites Can Not Always Be Trusted
Guest post from Lisa Gualtieri, PhD, ScM, Adjunct Clinical Professor in the Health Communication Program at Tufts University School of Medicine. Lisa teaches Online Consumer Health and Web Strategies for Health Communication. A social media user herself, Lisa...
Is Your Healthcare Practice Patient-centered?
Yesterday I was at a monthly TelePresence meeting of the Person Centered Health initiative, a group that started in Canada that's closely aligned with the Society for Participatory Medicine. At this meeting, some expressed concern that the memes of “person-centered...
Calling All Physicians: Support the Participatory Medicine Movement
Participatory Medicine is a new paradigm in healthcare, one that promises to enhance healthcare efficiency, transform the experience for both the patient and their providers, and improve healthcare outcomes. This cultural shift requires adaptation among healthcare...
Are consumers at the bottom of the evidence pyramid?
We're pleased to present another guest post by Amy Romano, which first appeared on the phenomenal maternity blog Science and Sensibility. See also her newest post, last night, here - including a terrific BlogTalkRadio interview in which she expresses herself on the...
