e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
Unleash the Hot Talent: A Letter from a Patient
This is a guest post from Christine Kraft, Twitter friend @ChristineKraft. She's a pensive, musey blogger at CocoVillage, and "wicked smaht," as we say in Boston. She's also the one who introduced us to Regina Holliday last year. She recognizes talent when she sees it...
Health 2.010: New Year, New Era
This is a guest post by Lucien Engelen (Dutch Twitter friend @Zorg20), who was featured in October's The internet is changing healthcare – video from Reshape09. Here, he takes it to the next step, moving from health 2.0 to "health 2.010”. I love it! - Dave __________...
Video: If Air Travel Worked Like Health Care
Back in September, Jonathan Rauch of the National Journal wrote a terrific (fact-based!) send-up of our archaic, arcane, not-customer-centric healthcare system, titled "If Air Travel Worked Like Health Care." I wish I'd known about it then, but I only learned of it...
Health data rights on CNN
Elizabeth Cohen, CNN Senior Medical Correspondent, captured the zeitgeist of the health data rights movement in today's must-read article, Patients demand: 'Give us our damned data'. An e-patients all-star team is quoted in the story: Jen McCabe, Regina Holliday,...
The Invisible Stakeholder:
Why America Needs a Patient-in-Chief
The following is the proposal I submitted Tuesday, to speak at O'Reilly / TechWeb's Government 2.0 Expo, May 25–27 in Washington. ______________________________ The Invisible Stakeholder: Why America Needs a Patient-in-Chief “These are exciting and very...
My Father’s Medical Record Fiasco
Guest post by Alan Viars (@Aviars), CEO of Videntity Systems, Inc. This past year my father required open heart surgery. This is a short article about the hurdles we (his family) encountered along the way. I’ve changed the names, because it is not my intention to...
What’s in your… bucket queue?
Prolog: Cheryl said she wasn't sure whether this post belonged on the e-patient blog. It sure does: When lives are prolonged by medical success, we get to do all kinds of things we wouldn't have. It also belongs here because this short little piece contains a terrific...
“The Quantified Patient”: my talk at “Quantified Self” show&tell, December 2009
The Quantified Self (aka "QS") is an informal San Francisco based group of people who are tracking one thing or another about their lives. (Could it exist anywhere else??) They have occasional "Show&Tell" meet-ups, with elbow-rubbing and a series of quick talks,...
Access is (almost) everything
Or: Why health geeks should pay attention to internet access geeks. The Pew Research Center's Hispanic Project and Internet Project just released an in-depth look at internet penetration across racial and ethnic categories in the U.S.: Latinos Online, 2006-2008 From...
PeoplesPharmacy.com in NYTimes: “Not All Drugs Are the Same After All”
We're thrilled to see our Joe and Terry Graedon, of PeoplesPharmacy.com, in the New York Times ("Not All Drugs Are the Same After All") telling a truth that the FDA hasn't figured out: generics don't always work the same as the brand name drug. Joe and Terry exemplify...
“Concern that sharing information with patients may cause sustained psychological distress is probably unfounded”
Cross-posted, with prolog, from the blog of Ted Eytan MD. Yesterday the Institute for Healthcare Improvement's "WIHI" series hosted a terrific webcast on the Open Notes project that's being funded by the Robert Wood Johnson Foundation. (I need to dig up the link to...
Ahem. :-)
I am about to punk my well-known doctor. :–) Me being me, I just had my annual physical. Great visit and all that. Yesterday I got a letter about my lab results. My cholesterol and weight are trending unfavorably, so the good doctor said "you need to take lifestyle...
